About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, August 27, 2014

I Choose To Live My Life Thinking Positive


Somethings I can not do:

 I am unable to clean my own home, because of my health.
Fortunately, I have cleaning service every two weeks. They steam my floors, clean my bathrooms, dust my furniture, vacuum and clean my kitchen. and dust my plantation blinds and ceiling fans.

I  am unable to smell:

 Thankfully my service dog is here to assist. Like the time my iron was burning on the inside fortunately, he warned me and then it  began burning on the outside, I was able to unplug it and place in the sink.

 I place things on the stove and at times I get busy and forget it, my dog or husband gets me, because they smell it beginning to burn. I don't cook anymore leaving the kitchen. It was a rude awakening.

I can only complete one task at a time. It may take a lot more time to complete it, in the past I was very good at multi-tasking.

 I can't concentrate for a length of time. 

 I am quite slow doing things.

 My voice gets very low at times, I must repeat it several times before others can hear me. It is quite uncomfortable working at speaking louder.


I could go on and on but I just want to share to give you an idea of a short list of what I am not able to do. I do not dwell on what I can't do.

 I choose to live my life thinking positive.

  I wake up each day being thankful that I made it another day.

 I meditate, exercise my body and mind.  I just joined a singing group.

 I am going to be giving  a seminar on Parkinson's disease in November.

 I  have a wonderful family and friends. Yes, life is good.


Make the best of what you have!


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