About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, March 26, 2016

Live a Little and put joy in your life



The joy of waking up each day, is a gift I am thankful for
I have learned to value all things even more
Just going outside and feeling the sun beam on my skin
Giving a warmth not just on the outside but within

Watching the birds soar up high in the sky
Remember the time I ran with my kite going very high
Riding my trike as fast as I can, feeling the wind blowing
It helps me to feel full of life and I am glowing

As I was walking out to get my mail
I lost my balance and I fell
Fortunately, I didn't get hurt
But I did get grass stains on my shirt

Life gives all of us ups and downs
But I will not get wrinkles, because of frowns
I have wrinkles for laughing and smiling
To me, it is a refreshing form of styling

So live a little and have some joy in your life
It so much better than being full of strife!

Monday, March 14, 2016

So Many of us with Parkinson's



There are many of us that have Parkinson's
We take so many pills, we could be pharmacists.
Some of us shake, while others loose their balance and fall
There are people who are unable to smell at all.
Some of us are rigid, and others are quite slow
Some need canes, walkers, or even a wheel chair to go

I have seen people with a mask expression on their face
We may not be able to button our clothes or tie our shoe lace
Some begin to move and freeze suddenly, as if our feet are glued to the floor
We may talk in a low soft voice, repeating ourselves to others can be a chore
We may need help getting up or rolling over in bed
Possible nightmares and hallucinations are things we dread
Although we can experience all of these things or just a few for now
Parkinson's is a progressive disease, we must take control somehow.

We can do exercises and mediate, and think positive.
We must overcome the depressed feelings, by being cognitive
Exercise will help loosen your body, so it is not so rigid.
Take a walk or ride a trike if the weather is not frigid

Learn about Parkinson's, understand what is happening to you
Nip it in the bud, when depressed feelings are the Parkinson's blues.
Join a group, be around people, go outside and look at nature
Those blues will begin to fade away just  like vapor.

Working together, sharing our lives and feelings
Gives us strength and hope with all of our dealings


Friday, March 11, 2016

A walk through the woods



I walked through the woods and feeling the breeze
I felt so relaxed and so much at ease
Seeing the birds building nests
I found a spot to watch and rest.
As I was sitting quietly with my eyes on the birds
I listened to them chirping happily, as if it were words

I decided to walk back to where I started from
I began to get confused and felt so dumb
Telling myself to calm down, I saw the trail
Finally back, I could breathe and exhale.
There is so much I want to do explore
I have to be careful and plan a little more


Sunday, March 6, 2016

You will always be with me






You have been with me for many years
Off and on I felt so much fear
As the years past, I wanted to find myself
Can I handle all of it, or should I just wait and put it on the shelf
I saw and felt something was happening to me
What is my future, I couldn't foresee.

I read so much, and talked to so many professionals
So now, I guess, this is my confessional
I kept thinking the only way to get a handle on this
Taking control, for now there will be no bliss.

Realizing I was not alone, I joined several groups  
Luckily, I didn't have to go through hoops.
I continued to learn all that I could find
I wanted to make certain I would not be left behind.

I realized you will always be here, trying to overcome me.
Now, I am in control, even though I can't be totally free
I will continue to fight you and will never give in
You are Parkinson's disease and one day I will win.


Saturday, March 5, 2016

Why Can't I play like a child?






Have you ever wanted to act like a child , stumping your feet in a puddle
Or just wanted to dance doing the Grape vine or just the Shuffle

It's perfectly fine to let yourself live and have some fun
As long as you are not hurting anyone.
I can remember as a child, we would have street parties
We now have drinks on the drive for all that are gnarly

I would love to go skating, like I tried a few years ago
I laced the skates, feeling young, and I began to glow
I stepped on the driveway and started to glide
Before I new it, my feet were going up to the sky
I felt my pain and thought it was goodby

Now I realize, we don't fall like we did as a child
I crossed that off my list, not wanting to go wild
Maybe I could try hula hooping again
I remember falling, and what pain.

What else could I do, that is childlike and exciting
I  guess I'll get my trike and go riding