About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

Translate

Saturday, September 12, 2015

Believe in Yourself


Believe in yourself, because you are an amazing soul
Only you are here to test yourself and take control
You may not be able to do the way your use to
But you can at least try and try again, for you

You have nothing to loose and all to gain
So get up and move, even if you need a walker or a cane
It's better than just sitting and going insane

If you are in a wheelchair, don't just feel depressed
Move your arms and limbs up and bring them down to rest.
I knew you can do it, a little at a time
With practice, you will be just fine.

Thinking good and positive thoughts will help you each day.
If negative thoughts come by, just through them away.
Before you know it, you'll feel better as each day passes
The next time I visit, you'll probably be in exercise classes.


Wednesday, September 9, 2015

When We Had Our Motor Coach



When we had our motor coach, we traveled many miles
We saw God's beautiful country, and saw nature in the wild.
I spoke to many people, sharing Parkinson's awareness, with a smile.

Many pamphlets from NPF, I passed out to all that were interested.
I hope all learned while I spoke, as well as the places we visited.

Our 10 pound maltese drew quite an interesting crowd
For many never saw a small service dog, as they gathered all around.
It helped to let many know what our dog does for me
I was able to tell them about my Parkinson's disease

I remember meeting a couple, the man had a mask face
He couldn't talk very good, but we sat and spoke for awhile.
He said he was ashamed of his mask face and prefer not to be around
I told him he didn't ask for it, so please stay for now.
He said that he was grateful, as I saw a small movement in his brow.
He showed me his photos, he has been taking
This is one thing, his wife said that keeps him from breaking.

I also became friends with a Deb, who is an artist
At Christmas, she gave me a painting that was her hardest
She finished it, with her Parkinson's being in full swing
To me, she is an angel, to care enough to finish this beautiful thing
The picture hangs to show all, she surely will be an angel with wings 

It is hanging straight on our wall, I didn't take a good photo of it.


Monday, September 7, 2015

Life is a Wonder





Life is a wonder of many things to discover
I continue to be amazed of all I uncover
Incredible beauty, nature surrounds, 
Things to see, and wonderful sounds. 
Every life, has so much potential, 
Feed it with love, that is essential

Life may bring sorrow and grief, 
Sometimes it's just unfairly brief. 
With our daily struggles and even pain
Can make our bodies feel constantly drain.

I believe in thanking our Lord for each day 
I do my exercises and take time to pray.
Life's too short and time won't freeze
Enjoy it all, won't you please.

Thursday, September 3, 2015

We may have a disability but we have feelings too!

We may have a disability but we have feelings just like you.



I saw you staring at me as I walked down the grocery aisle
Is there something you want to know, or is it just your style?
You can ask, that's alright as I stand here with a smile.
The boy said, I W--want to say--y, I stutter, that's my S-style.

I said, My name is Margie, I'm glad to meet you.
He, said his name was P-Paul, nice to me you too-oo
I saw you walking, with your head up high
Do people m-make fun of y-you, like they do m-me-e, with a sigh.

I have Parkinson's and you stutter, don't feel ashamed, 
We didn't ask for this, so there is no one to blame.

He was on his break and went back to work.
I saw Paul's head down, bagging groceries with the grocery clerk
Boys working beside Paul, began to goof off and make fun of him
I wonder if the manager saw, although the chances were slim.

I finished my shopping but before I could speak to the manager
I saw those boys in the office, as the manager looked red with anger. 
Red faced boys with their heads down, apologized to Paul.

The new manager stood and then spoke with a stuttering drawl.
It's time to g--get back to w-work y'all.

I saw Paul working hard with his head up high, smiling to all.

Tuesday, September 1, 2015

Super Minion

If I were a super Minion, I would fight Parkinson's disease
So that I can finally be free to be the way I use to be.
I would join my gym and participate in jazzercise class
Or some sort of extensive exercise and have a blast.

But I am not a super minion, but I am in charge of me
I do everything in my power to feel free
I will not give in to these medical problems
All the doctors can do, is what is now common

Give me medicine and set up another appointment
This isn't a medicine show, giving me the magical ointment
So I must do what is necessary to take control
By living and not putting my head down in a hole.