About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, July 23, 2016

Sound of Music









When I hear the sound of music it makes me smile
I enjoy dancing, even if it's just for a little while
Listening to the melodies, that I truly adore
I can feel the beat as my feet wants to soar
So off we go dancing on the dance floor

I may walk with a cane and shuffle my feet

But I can get up dancing and it feels so sweet
Up on the dance floor, I feel healthy and free
Then all of a sudden down I go, falling on my knees.

I get right back up, knowing it is time to sit and rest

Off the dance floor I go, knowing I am so blessed!
No broken bones, a little bruised and just out of breath
These are special times for me, I must confess.

I like hip hop, line dancing, doing the slide, slow dancing and more

I enjoy all of it, even if I mess up, I laugh doing what I adore.
Sharing the music with my husband is always a pleasure
Certain songs brings back many memories that I treasure.

Have you ever listen to a song and felt that beat
Your body may tingle right down to your feet.
Music has a way to enlighten us during the day
It brings us happiness and joy in so many ways

Wednesday, July 20, 2016

Parkinson's around the World




So many of us around the World have Parkinson's disease
Each day, the numbers  continue to grow, it is hard to believe
There are so many questions, without answers for sure
Will we ever know, or just continue to hope for more  

Our scientists, doctors and researchers are finding out more

The brain is a big puzzle and challenge as they explore.
As time has past, they are getting a better understanding
The World Parkinson's Coalition is outstanding

Renowned health professionals, researchers, and advocates globally will be there

Discussing cutting edge science, clinical research and comprehensive care
Knowing that exercising, meditating and positive thinking is the trend
Many Professionals agree it is another tool that they recommend.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Some helpful information if you are interested:



Join us in Portland, Oregon for the 4th World Parkinson Congress 
More than 3,500 people from 65 countries will attend the WPC 2016 in Portland, OR 

9/20/2016 to 9/23/2016
When:9/20/2016
Where:Oregon Convention Center
777 NE Martin Luther King Jr Blvd
Portland 97232
United States
Presenter:World Parkinson Coalition

Go to their Website to for more information:

http://www.wpc2016.org/?page=Promotion

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Sunday, July 17, 2016

Exercise with HOPE






Parkinson's disease can be difficult to cope
The strongest therapy above all, is hope
We have the strength and willpower to defeat
We exercise from our head right down to our feet

By exercising and meditating, makes us feel unstoppable
During those times we feel as if anything is possible

Positive thinking is the next thing to do
Change the negatives to positives, is my gift to you
This will help you feel better and not be feeling blue

You may want to use the computer to play some games
What a wonderful way to exercises your brain
You can also listen to music and dance
It is better than sitting like your in a trance

Try to relax your body and mind
Giving yourself some quiet time.

You completed this task, I call it a wonder-drug.
Now it's time to smile and give yourself a hug.

Tuesday, July 12, 2016

Olympics and Memories



Our wonderful Olympics and the memories it brings
When I was in school, gymnastic was my thing
I loved the vault, back then, we called it the horse 
Never letting my mind wonder and staying on course
I would run up and spring doing a simple flip
Coming down and landed making it stick
Our gym teacher was very, very strict.

She would say, get out there and do better than your best
Maybe, just maybe, I strive today to fight PD and feel blessed
I hope that after all these years, I still pass the test.
I do all that I can and more to overcome this disease
Meditation helps to relax my body and mind, to feel at ease 

I have my pity moments, don't get me wrong
But then I say to myself, get over it and stay strong.
There are others, that have it worse than me
If there is a spark left in me, I will not flee

Throughout my life, I have had many challenges to face
As time has past, I move slowly, but at my own pace
I am thankful for my family, friends and the Lord
It is the greatest of any rewards!

Thursday, July 7, 2016

My Parkinson's Team






We share ourselves with others that have Parkinson's disease
By sharing our inner selves, we feel relax and at ease
There is no one that will judge or find fought with what we say
Our family and friends try to understand, and say it's okay

Being connected with those who have it, truly understands
So won't you try and free yourself, let your thoughts expand

Sometimes we share our stories 
Without having any worries

We can laugh at silly jokes, which in itself is good for us
By sharing our symptoms, the knowledge is a big plus
Sometimes we share our grief, with flowing tears, 
Always knowing there are people that truly care

We try to help others with our kindness and compassion
Coming away with such kind thoughts of total satisfaction
We thank this wonderful team that was created
" My Parkinson's Team",  truly is the Greatest!

                                                                                       This poem is written by Margaret Swope


https://www.myparkinsonsteam.com


Monday, July 4, 2016

Just for Today

There is a version that is attributed to Dear Abby and there is evidence to suggest that this poem was used by Al-Anon and other12 Step Programs.  Regardless, I believe that this is a wonderful poem for caregivers. 
Found on:http://www.intentionalcaregiver.com/just-for-today/

I feel it is for all of us





Just For Today
Just for today I will try to live this day only
And not tackle my whole life problem at once.
I can do something for twelve hours that would appall me
If I felt that I had to keep it up for a lifetime.

Just for today I will be happy
This assumes to be true what Abraham Lincoln said,
“That most folks are as happy as
They make up their minds to be.”

Just for today I will adjust myself to what is,
And not try to adjust everything to my own desires.
I will take my luck as it comes, and fit myself to it.

Just for today I will try to strengthen my mind
I will study, I will learn something useful.
I will not be a mental loafer.
I will read something that requires effort, thought and concentration.

Just for today I will exercise my soul in three ways:
I will do somebody a good turn and not get found out;
If anybody knows of it, it will not count.
I will do at least two things I don’t want to do… just for exercise
I will not show anyone that my feelings are hurt.
They may be hurt, but today I will not show it.

Just for today I will be agreeable,
I will look as well as I can, dress becomingly,
Talk low and courteously, criticize not one bit,
Not find fault with anything and not try to improve
Or regulate anybody except myself.

Just for today I will have a program.
I may not follow it exactly, but I will have it.
I will save myself from two pests: hurry and indecision.

Just for today I will have a quiet hour all by myself and relax.
During this hour, sometime, I will try
To get a better prospective of my life.

Just for today I will be unafraid, especially,
I will not be afraid to enjoy what is beautiful,
And to believe that as I give to the world
So the world will give to me.