About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, July 4, 2016

Just for Today

There is a version that is attributed to Dear Abby and there is evidence to suggest that this poem was used by Al-Anon and other12 Step Programs.  Regardless, I believe that this is a wonderful poem for caregivers. 
Found on:http://www.intentionalcaregiver.com/just-for-today/

I feel it is for all of us
Just For Today
Just for today I will try to live this day only
And not tackle my whole life problem at once.
I can do something for twelve hours that would appall me
If I felt that I had to keep it up for a lifetime.

Just for today I will be happy
This assumes to be true what Abraham Lincoln said,
“That most folks are as happy as
They make up their minds to be.”

Just for today I will adjust myself to what is,
And not try to adjust everything to my own desires.
I will take my luck as it comes, and fit myself to it.

Just for today I will try to strengthen my mind
I will study, I will learn something useful.
I will not be a mental loafer.
I will read something that requires effort, thought and concentration.

Just for today I will exercise my soul in three ways:
I will do somebody a good turn and not get found out;
If anybody knows of it, it will not count.
I will do at least two things I don’t want to do… just for exercise
I will not show anyone that my feelings are hurt.
They may be hurt, but today I will not show it.

Just for today I will be agreeable,
I will look as well as I can, dress becomingly,
Talk low and courteously, criticize not one bit,
Not find fault with anything and not try to improve
Or regulate anybody except myself.

Just for today I will have a program.
I may not follow it exactly, but I will have it.
I will save myself from two pests: hurry and indecision.

Just for today I will have a quiet hour all by myself and relax.
During this hour, sometime, I will try
To get a better prospective of my life.

Just for today I will be unafraid, especially,
I will not be afraid to enjoy what is beautiful,
And to believe that as I give to the world
So the world will give to me.
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