About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, March 30, 2015

Sunday, March 29, 2015

I know I can do this








I may be slow but I know I can do this
I will slow down this thing inside of me
If wishes could come true I'd send it to the black abyss
In reality, I know it is up to me, and I will not flee.

I take my medications on time
Then begin to meditate and exercise 
which helps me feel more energized
I will play word games to help my mind. 

To overcome those Parkinson's blues,
Go out in the sunlight, it helps me and it may help you.
Always remember you are not alone
I can always be reached on the phone.


Saturday, March 28, 2015

Believing in Yourself.




Life has many ups and downs
I for one try not to frown
Often my Parkinson's is a struggle
I work hard to rid myself of this trouble.

At times I drool as well as shuffle my feet
I exercise and meditate to feel complete.
I will not quit believing in me.
Life is to important and I will succeed,
By slowing down Parkinson's disease.
I like to dance and be happy too.
I have no time for the Parkinson's blues.

From my life, I'll never hide,
Loving the journey, with every stride.
Wherever I go, one thing I'll take,
Smile of joy, each day that I wake.

Living my life to the fullest is what I do
It's important to me, 

and I'm sure it's important to you.

Thursday, March 26, 2015

I will not give in


Each breath I take, I know I will not give in to Parkinson's Disease.
God has given me another day and I will do all that is possible
to slow down this thing inside of me.

Many days are good and I do my exercises,
like Tai-Chi to regain my balance
This helps me feel completely energized
With pride I feel totally valid

In the afternoon, I am on my lanai or in my pool
It helps to remove the Parkinson's blues.
It's better than being at work or at school.
I enjoy watching the golfers on the green
and the birds building a nest in a tree.
Hearing the sounds of the birds tweet
It sounds so sweet.

I take a few minutes to pray.
Thanking God for this day.


Wednesday, March 25, 2015

I fell in the shower





I woke up this morning with quite a bit of pain
I took another hard fall in the shower
I have no reason to complain
The shower has a bar as well as a seat
I guess I felt I didn't need it, so I cheated

I am thankful I didn't break any bones
The doctor told me in his strong tone
"Use my power chair in the evenings"
I am thankful, I wasn't bleeding
I will not take anything for granted
This is the life I have been handed.
I will take precautions to be safe

I will do all that is possible
and not let any obstacle
stop me from slowing PD down.


Monday, March 23, 2015

I do Believe !



I believe in God to get me through the day
I wake up each morning, thanking God as I pray.
How wonderful to witness the morning
Hearing the birds sing is so charming
Seeing the trees bloom and the flowers budding
I can hear the bees humming.

The beauty of Spring is a wonderful thing
It gives me so much more zing.
I feel more alive you see.
I can't answer as to why it does that to me.

I believe in meditation and exercise 
Which helps to make me more energized
In slowing down Parkinson's disease.

Friday, March 20, 2015

PLEDGE TO DO ALL THAT I CAN!

MEDICAL ALERT
I have  PARKINSON'S DISEASE
which can make me move slowly and
have difficulty standing or speaking
I AM NOT INTOXICATED
Please call my family or physician for help.



I pledge to do everything that I can to slow Parkinson's disease.
When I had my stroke, I had to move it or loose it.
I worked through the pain, to get back to being me.
I will do the same with PD, I will not quit.

I am one of the lucky ones.
I am still able to move, but I can't run
There are times I fall down hard
They thought I was drunk, 
I could have been barred.
But I showed them my card.

I try to embrace all of the challenges I face. 
I will do whatever I can
as long as it's not a race.
God is my number one fan!
With God by my side
I turn to him as my guide.




Thursday, March 19, 2015

No I have not slept well



I didn't get much sleep last night.
I feel like I was out having a fight
When I don't get much sleep
I feel like a creep.
I start out by getting a shower
Hopefully that will give me a little more power.

I took my meds and sat down for a while 
That was a big mistake, that isn't my style
I woke up feeling miserable for an hour.

I completed my meditation and exercise
This helps me feel more energized.
I was enjoying being in our spa,
our grandkids were in the pool, with Papa
They were playing with a beach ball.

It turned out to be a good day
Thanking God as I pray.

Tuesday, March 17, 2015

With Parkinson's and Dystonia




With my Parkinson's disease and the Dystonia pain,
I choose to be happy and enjoy my life
By doing so, I have everything to gain.
Life is too short to feel like you are spiraling down.
Please don't give up and sit and frown.

Reach down inside to find your inner drive
When you find it, you'll feel so alive
Sometimes we struggle and suffer
That's what makes us a little tougher.

Life gives us so much more
Step outside and try to explore
Take a moment and open your eyes
Hopefully you'll be able to see the sunrise

As you wake up each day
Take a moment to pray
Thanking God for letting you stay.

Monday, March 16, 2015

Breathe



Life is something we all share
Just like oxygen in the air
How we live it, is up to us
Positive thinking is a must.

Life can be fun, just let yourself go
As you dance and laugh, your face begins to glow.
Feel alive, and enjoy life whenever you can.
It is better than being alone and getting a tan.

Ride a bike or take a walk
It's ok if you want to talk
There is so much living you could do
You always do for others,
This time do it just for you.

Sunday, March 15, 2015

Pain- I don't display !



Pain is something I don't display
Even when times seem to turn grey.

When the Parkinson's blues get me down
I do my best to turn it around.
I don't want to spend my day crying
Life is short and I'm not dying

I regain myself completely
Now it's time to smile freely

I ride my trike as hard and fast as I can
to feel the breeze hit my face
I'm sure the sun has given me a tan.
There is no way, I could ever race.

It felt good to get out and exercise
I was feeling so energized.
The medicine helped ease the pain
but exercise helped me regain
the positive feeling that's inside of me.


Friday, March 13, 2015

I enjoy doing things


I enjoy doing things, but now and then
I walk for a short while and down I go
I try my best not to hit my head.
But you just never know.

I bend over and I begin to drool, with no warning.
It came right out onto my friend, Bea's flooring.
Things happen, all I can do is apologize
and clean up without having to compromise.

I went to the store and felt someone staring at me.
I purchased a bottle of wine for Bea.
A woman said, You walk like you had more than a drink or two.
I said, Would you let me be, please?
Don't judge me, I have Parkinson's disease.

I stopped at Bea's home and gave her the wine.
Thanking her for being so kind

After I arrived home, I said what a day.
First I fell, but I can't complain, I was ok.
Then I slobbered on Bea's floor
All I did was go to the store
The woman thought I was drunk,
I placed the bottle of wine in my trunk.

I could be angry or depressed
But I am laughing, I must confess.




Tuesday, March 10, 2015

Twinkle in My Eye, Smile on My Face and a Purpose in My Heart



Twinkle in My Eye, Smile on My Face and a Purpose in My Heart

Do  you remember when you were younger,  the way you felt when you woke up?

You had that twinkle in your eye
With a dream of being a spy
You had a smile on your face
And pretended you had a case
You had a purpose in your heart
Making a difference would be your part.

As the years have past, and Parkinson's took hold
Wondering how your life has unfolded.
The twinkle in your eye is not as bright
But you still have that look, that is out of sight.
You continue to have that smile on your face
How special you are, you could never be replaced.
The purpose in your heart, now grows even more
To spread the information about Parkinson's from shore to shore.

Monday, March 9, 2015

Life Is Beautiful!







Life is beautiful and I have been blessed
I've decided to choose my own quest.
To live life each and every day.
Thanking God as I pray.

Life is special and each day I cherish
I never know when I will perish
I choose to live as happy as possible
Negative living is not plausible.

I have days that I feel blue
But I snap out of it too
I will not let it take control of me
Smiling and singing helps me feel free.

I like to ride my trike or do tai-chi
This helps me to feel as good as can be

It takes work to get the courage that is needed
but I will not go downward and feel defeated.

Life is a beautiful thing
Happiness is what it brings!


Things will never go back to how it use to be.




There comes a time in my life when
I realize I can never go back to the way it use to be
Some people make such a strife
I can't change it, but I can hope for others and me.

I would just like to go without the constant pain
I have everything to live for and all to gain.
I am thankful for being alive
Knowing God is by my side.

I enjoy seeing nature in the wild
Fortunately, the weather has been mild
It offers so much, open your eyes, 
Hope of today, with every sunrise.

I love to watch the sunset each night
and see the night's stars up above
It is such a beautiful sight.

As I watch, I can feel God's love.

Saturday, March 7, 2015

I sit in my Rocker



I sit in my rocker and rock away
Thinking how wonderful life is today
I completed my task, and it's almost noon.
Gleefully, I am singing a happy tune.

As I look through my sliding glass doors
I saw my neighbor doing his housework chores.
I walked out on my lanai, and we talked for awhile.
We ended our chat, each with a smile.

As I turned to come inside
I saw the gator floating by
I can't pretend, 
I am scared of them.

I took my dog for a walk
All of a sudden a hawk flew over
I tried to run for cover
I got splatter on my head
This is when I wish I wore a hat
I should have thought of that
I couldn't even say any words
I went home and took a shower
To feel clean and smell like a flower.
Back in my rocker I sit and smile
I think it's funny, as I laugh for awhile.



Friday, March 6, 2015

I Am Trying My Best



Each Morning I try the best that I can
To move this body of mine
I continue this all of the time.
I exercise, meditate, concentrate
on being positive that is my plan
I will not procrastinate.

This is my way of fighting Parkinson's disease
Some days are harder than others
I find as time passes by, it takes longer to achieve
There are times I want to stay under my covers
But I push myself forward,
to insure I'm moving onward
so I can move this body of mine

It is difficult, I must confess
when my dystonia does not cumber
the pain makes me depressed
My toes curl under
and my feet twist inward
I feel so injured.

But with all of this, I fight to overcome these things
I thank God for the love he gives
Life gives me challenges to face
This challenge I can overcome, with God's grace.


Thursday, March 5, 2015

Strength & Courage





Joy is something I like to display, 
Even when times, are a little grey.
I have this strength inside of me
to fight Parkinson's Disease.
I will do whatever is needed
to insure I am not defeated.

I could just give in and pout
but I want to live and shout.
Life is full of negative things
I like to feel the positive it brings.
God has given me another day
I just can't sit and waste it away.

I have some days when it is hard to cope
But I always believe in the word," Hope"