Life Is Not Giving Up

Off to the doctors, to see what could be done
My pain in my shoulder, that's not been fun
I will begin physical therapy and given medication
I am hoping this will resolve the pain in my location.

I call it, my band-aid and patch-up time
Helping me heal, so I can feel fine.
Having Parkinson's in itself is enough
Many of us know, it can be quite tough

With great effort we will continue to try
We will pick ourselves up, even if we cry
But we are fighters you and me
We will overcome these things, you will see

There is so much living we want to do
So, lets gather together, and don't be blue
I am certain things will be alright
Since we, you and I are in this fight,
There is nothing we can't achieve
We have to always sincerely believe.

The day started out ok...

Just because I have Parkinson's disease
Doesn't mean I have to stop living you see
I decided to ride my trike while singing and laughing out loud

It began to sprinkle, the sky is getting covered with dark clouds

I decided to turn back home,with my dog in my basket, pedaling as fast as I can
The sky opened up and it poured, you would think I was some sort of a frogman
We were both soaked to the bone when we entered into the garage.
I shut the garage door, wishing for a bath and a nice massage.
Reality set in, I had to dry the dog and then myself, before entering the house.
The rain stopped and our house was so quiet, nothing stirred not even a mouse.

We don't have any pests, except for gators, crocs and snakes
Thank goodness they are outside, or I'd end up like a fruitcake.
I snuggle-up on the couch, with my dog by my side
All of a sudden, I saw a glimpse of something gliding by.
I sat up so quick, wondering if my eyes were playing a trick 
It was only a shadow from a snake going across the deck.

Vote for the Kid-Designed PD Awareness T-Shirt!

TO ALL OF YOU THAT VOTED:

It is now closed

THANK YOU SO VERY MUCH !!!!!!!

We should have the results by the end of March.

This is very personal and I am asking for your support. 

Our 9 year old granddaughter, Madison created a picture to be placed on a t-shirt for Parkinson's Awareness . 
The winner will have their creation placed on the Parkinson's disease Foundation T-Shirt.
Madison has made it to the final's. 

Note: I asked my granddaughter why did she want to 

enter this. She stated ," You work so hard to fight parkinson's and not many people know about it, so I am helping because I love you grandma."

Yes, I am very proud of her !


Vote for the Kid-Designed PD Awareness T-Shirt! 

Which t-shirt design should be featured on PDF's Awareness T-Shirt? Vote for your favorite by Tuesday, February 23 at 5:00 PM ET.

All designs were created by children ages five to 15. 

You don't have to sign up to anything, just vote for your favorite one. The children put a lot of thought, work and love in their work.

Please go to the following:    http://www.pdf.org/awareness15 

Our granddaughter is number 3 

Thank you very much

My Workstation

This is my good feeling and positive thinking workstation
It helps me to feel good and spread cheer, it's my recreation
A good tool to search and seek for information
I can relax and concentrate for my poetry creation

Using my computer the world is smaller, I do so many things
I research many different articles, enjoying the information it brings.
I am so happy to be here in this age of computers
I can even order things such as a power scooter.

I look for Parkinson's disease updated news
I also do Tai chi with videos and lift weights as I view
I am in a clinical trial, the doctor sees me and I see her
She tests me walking, seeing my tremor and hears me slur.

Yes my workstation does so many things for me.
It is a wonderful tool to find information free
But it doesn't take the place of getting outside
Or being with friends so I don't want to misguide
Living life to the fullest is the best advice I can give
Use the computer in moderation, and live, live, live!

My Life So Far

At age 38, I remember my boss asking if I had a problem with alcohol
Seeing my tremors when stressed, I wanted to crawl in a hole
I went to the doctors and he said it was my nerves,
He gave me valium and that through me for a curve.
I kept going back to the doctors over the years
They all said there is nothing wrong, just nerves dear.

In 1995, I was in a severe car crash, I am thankful to survived

Cracked bones from my sternum, all ribs and tale bone, but I was alive.

I was able to come through with therapy just fine.

In 2004 I began dragging my leg, 
I saw a neurologist, to see what they would say
I went through so many tests, 
Off to a movement specialist, who is the best
My diagnosis was Parkinson's disease
Is this a joke or some sort of tease
It was like a dream, even though I felt relief
It wasn't my nerves, it had a name
All I knew was Michael J. Fox who had fame

Why me, I can't have anything else, but maybe I could have

I then had an aneurysm in my brain which left me paralyzed

My left side wouldn't move, making me feel so terrified.

Through daily hard work for nearly a year, 

I was back to nearly normal, feeling no more fear.

Then my feet began twisting and toes were curling

I have parkinson's with dystonia, it was hurting

Botox injections helps quite a bit 

Without the injections, my life was for the pits.

 Before I knew it, female problems began

After three surgeries, my life was already planned?

I had my teeth cleaned and that very night I had a dream

All my teeth had fallen out and I  began to scream

I woke up and all of my bottom teeth, were wiggly.

My dentist couldn't explain, but it was quite visibly.

I ended up with implants and bones in my lower jaw.

I still have more problems with them after all.

Last year, with Parkinson's that doctor taps my knee

my leg jumped up, almost hitting him in the jaw, I wanted to flee.

He said that never happened before, lets get an MRI to see

I have another issue to add to my medical list for me

My entire brain is filled with white matter

The doctor began speaking, all I could hear was chatter

It's hardening of the arteries to the brain

I then began to hear and realized I can't complain.

I exercise and meditate each and everyday.

I am in clinical trials and give seminars, that's my way
I have a blog for poetry and one for parkinson's up-to-date information
I named it my positive feeling, stress free workstation 
For everyone to read, it is part of my recreation

This Little Light Of Mine

This little light of mine, I'm going to let it shine.

Letting our light shine helps to spread good cheer

We are together in this, there is nothing to fear

Joy is something we should try to display

Even when we feel a little bit grey

We should listen to our inner voice, our intuition
Forcing ourselves to move, is our number one mission
Each morning feel blessed, that we are alive
Working together, we will push ourselves and strive

There are times we laugh as our moves seem awkward
It doesn't matter as long as we are going forward.
Each day we move, our light shines a little brighter
We will never give in because we are a fighter!

One Positive Thought

I try to think positive, instead of feeling sad

I know it is hard for some, but I am glad

At this time, Parkinson's hasn't given me apathy

For those that have it, they have my empathy

Life is something for all of us to share

We breathe the oxygen in the air

Never knowing what tomorrow will bring

I always think of today, with many to do things

Never knowing when we may parish

Life is worth every moment, we should cherish!

What can I do that is fun?

Each day that passes is just like a feather floating down from the sky.
We can look at it and think nothing or, we can play like a child that's nine.
I may fall getting bumps and bruises or worse, a broken hip or bone
It's better for me to do things, than just sitting all day alone.

I tried to play jump rope, as my mind said you can do it
My husband walked in and began throwing a fit
I said you know me, I have a lot of grit.
At that moment I began to fall, and luckily he caught me as I was going down
I said you are right, thank you for catching me before I fell on the ground 

Luckily he was there, I could have broken a bone or my denture
That was the end of my jumping rope adventure
I can't jump rope, go skating or even play tennis
Some days I guess I am just a menace

To do something that is safe, yet not boring and fun
I decided to squirt him with my water gun.
He picked up the hose and squirted me, I yelled ok, I'm done.

Later as I was lying in bed I wondered; What can I do tomorrow that's fun?

Set Yourself Free

So many times, we must remind ourselves, we are doing the best that we can

It ok to be slow, make mistakes, stutter or fall, we are not superman.

We are a living and wonderful caring person that's tries our best

Please don't look at us, as if we have failed some sort of test.

Some of us have a vacant facial expression, a mask like face 

This is what Parkinson's can do, don't hide or feel out of place

You should be proud, that you have taken the step to be around people

You have feelings, let others know you are just as equal

Tell people that you have PD and what you are going through

This will help them understand and you will feel better too.

Some of us are young while others are old

Some have tremors, while others show no symptoms at all

There are others that walk and all of a sudden can't move

Some use canes, walkers or a wheelchair and some walk so smooth

Many of us, never knew that much about Parkinson's disease 

We continue to learn each day, helping us feel at ease

We are the one's that have Parkinson's disease

So let people know about PD and we will all feel free!