About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Sunday, August 30, 2015

Three Brains - Thinking to Doing to Being (Joe Dispenza)



This is quite interesting. I want to share this with you.



Learning to feel good about life, has helped me overcome my depression
I don't want my life to be filled with sorrow with no expression
I have a difficult time upon awakening in the morning just to move
But when my medicine kicks in, I begin to improve
My body loosens up and I am thankful for each day
I exercise and meditate doing all that I can, my way.

Somedays I ride my tricycle, and other times I do Tai Chi
As long as my body is moving I am as happy as can be
I am also trying to improve my voice
I am doing all that is possible, I have no choice.
It is difficult to communicate, when I have to repeat what I say.
It is aggravating  and I don't want to loose my friends this way.

As long as I am trying to be the best I can be
It's so much better, than sitting and saying, Why me?


Saturday, August 29, 2015

Life is getting shorter



Life is getting shorter as each day passes by
There is no time to waste, I wish I could fly
Just like an eagle flying high in the sky.

I wake up in the morning as stiff as can be
Taking my pills to limber my body, just to be me

I live my life to fullest, that's how I  am
Not wanting to feel sorry for myself, that's not my plan

I work hard to overcome the things that are wrong
I meditate and exercise, helping me to feel strong

I  have help to keep my house clean, which is very important to me
I can cook and do laundry most of the time, with this disease
Some days, I need my husband's assistance
At first I was upset and quite resistant

I realized that's what he wanted to do
Parkinson's is not just me but my family too.
We help one another when the need is there
It is so much better than going to daycare.


Tuesday, August 25, 2015

My Medical History


In 1995, I was in a severe car crash, I am thankful to survived
Cracked bones from my sternum, all ribs and tale bone, but I was alive.
I was able to come through with therapy just fine.

I have Parkinson's disease with dystonia of the feet and calves
Why me, I can't have anything else, but maybe I could have
I then had an aneurysm in my brain which left me paralyzed
on my left side, making me feel so terrified.
Through daily hard work for nearly a year, 
I was back to nearly normal, feeling no more fear.

Before I knew it, female problems began
After three surgeries, my life was already planned?

I had my teeth cleaned and that very night I had a dream
that all my teeth had fallen out,and I screamed.
I woke up and all of my bottom teeth, were wiggly.
Dentist couldn't explain, but it was quite visibly.
I ended up with implants and bones in my lower jaw.
I still have more problems with them after all.

Last year, with Parkinson's that doctor taps my knee
my leg jumped up, almost hitting him in the jaw, I wanted to flee.
He said that never happened before, lets get an MRI to see
I have another issue to add to my medical list for me
My entire brain is filled with white matter
The doctor began speaking, all I could hear was chatter
It's hardening of the arteries to the brain
I then began to hear and realized I can't complain.

I feel so blessed for being here another day.
Thanking the Lord, as I pray.





Friday, August 21, 2015

Never give up when you really want it.

Never give up when you really want it.




There are times in our lives that we struggle and suffer
These experiences makes us be much more tougher
They teach us, that we are not alone with our struggles
We have ups and downs, that that can make us humble

Each day I try to always start with positive thinking.

This helps me to be upbeat and I begin singing.
I like to go outdoors to spend time talking to neighbors
I never have to worry about running into strangers.

I am not the type to just sit and complain

I don't want to have any negativity in my brain
Each passing day I know time won't freeze
God has given me the strength to fight Parkinson's disease.

I am thankful for each day the Lord has given me
I know when God calls me home, I will be completely free.
( No more pain and no more Parkinson's disease)

Sunday, August 16, 2015

My Service Dog, Spencer

My Service Dog:  Spencer Semper Fi  Maltese 9 pounds age 6 years old

I have a tiny service dog for all to see
People ask, what can he do for me
Some people say, this can't be true you see
You need a large dog, for Parkinson's disease.

Depending on each of our individual needs,
Just like PD can be different for you and me.
I had him tested to see if he could fulfill my needs
He caught on quickly, and the trainer was quite pleased.
It took me a while to learn how to take the lead
Having a Spencer is a blessing for me

He doesn't shed or have dander to clean
It doesn't cost a lot to feed
I don't have to pick -up much poop
There is hardly anything to scoop
It doesn't take much to exercise him
He'll run through the house to stay trim.






















I have Parkinson's disease with dystonia of the calves and feet.
Sometimes I am able to walk with my cane and other times I use my power wheelchair.I have a maltese because of my asthma being allergic to pet dander.
What does he do for me:


1. If I freeze, he gets up to my feet and digs at them for some reason it works and I can take a step.

2. I have an alarm system and if I fall and am unable to get up, Spencer will go to a button and press on it, the monitoring company will call and if no answer will send help. They know I have a maltese service dog, who is trained for this.

3. Spencer let me know when I had an electrical fire with my iron and I didn't notice it until it arced and went into flames. ( I am unable to smell.)

4. He always informs me when someone is coming to my door.

5.Spencer can tell when something is not right with me and circles me and gets up on his 2 back feet letting me know to sit down. ( I have had a major stroke paralyzing my left side until I was able to go through a year of therapy to get 99% back to normal.)

I am so thankful for having such a caring service  dog for me.

Many people with Parkinson's disease have big dogs to be their service dog. I truly understand. I am happy for them. With me, I prefer a small dog living in a senior citizen development. It is so much easier to clean up after he goes to the bathroom. He can also ride in my wheel chair with me, if I want.

Friday, August 14, 2015

Parkinson's: If You Understood Would You Act Differently?



He states:

"My granddaughter wants to be a pilot like I use to be. I wish there was a cure for Parkinson's, maybe someday. I am quite stiff and I am in pain. I stand here frozen, unable to move. People around me, don't have a clue what parkinson's is, if they did they would ask me, if they could do anything.You can't give me a cure for parkinson's but you can give me time, now that's a great gift."
~~~~~~~~~~~


Having Parkinson's disease can be lonely at times
You try to convince yourself that you are feeling fine
Accepting the fact, that certain things in my life have changed
I prefer to stay positive and just say, things had to be rearranged

I have always taken pride in my multitasking and being efficient
I am fortunate to complete one task now, and hope its' sufficient
I don't have much of a tremor, unless I am stressed.
There are times I need my husband to help me get dressed
Often I shuffle when I walk or take small steps
As I move along, I usually have to stop and rest.
I take advantage during this time, to see nature at its' best.

But there are times, that I feel so alone,
I just don't want to be the type that moans and groans
Everyday the pain is there, and at times it is agony
But I seldom complain, for fear of creating apathy

I am a caring person, and don't ever want to be bitter
I will do everything to slow PD, since I am no quitter.
If anyone asks what they could do, stop by or call
Share your time with me, is the best gift of all.

Sunday, August 9, 2015

I will not give into Parkinson's Disease



Each morning I take my medicine and begin my day
By exercising my body and mind, keeping PD at bay
I'm not a candidate for DBS, so I have to do it my way

At times I walk with a shuffle, occasionally my body comes to a freeze
I begin to hum a musical beat, and that's when I begin to move my feet
When I go shopping, most of the time a wheelchair is used
So I don't loose my balance and fall, getting all bruised

At times my dystonia of the feet and calves tries to put on a show
I get Botox injections in my feet and calves to help me though
Sometimes it happens when I am off and getting close for my meds
The excruciating pain is worse than giving birth, is what I mostly dread

I look at each day in a positive way.
I make the best of each and every day.

Tuesday, August 4, 2015

One therapy needed today


Just being with someone, may be the one therapy you need today.
Sitting and talking with one another makes the blues stay away
You feel human again, talking and laughing feeling positive
Being supportive of each other and bringing up our qualities.

Sitting together and watching nature at it's finest.
Watching the eagle soaring in the sky is timeless
Seeing a duck in the pond with the ducklings swimming behind
The beauty and love that is the feeling that's in my mind.

Enjoy each moment as we spend them together
We are making memories that will be forever.