About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

Translate

Tuesday, August 25, 2015

My Medical History


In 1995, I was in a severe car crash, I am thankful to survived
Cracked bones from my sternum, all ribs and tale bone, but I was alive.
I was able to come through with therapy just fine.

 I have Parkinson's disease with dystonia of the feet and calves
Why me, I can't have anything else, but maybe I could have
I then had an aneurysm in my brain which left me paralyzed
on my left side, making me feel so terrified.
Through daily hard work for nearly a year, 
I was back to nearly normal, feeling no more fear.

 Before I knew it, female problems began
After three surgeries, my life was already planned?

 I had my teeth cleaned and that very night I had a dream
that all my teeth had fallen out,and I screamed.
I woke up and all of my bottom teeth, were wiggly.
Dentist couldn't explain, but it was quite visibly.
I ended up with implants and bones in my lower jaw.
I still have more problems with them after all.

 Last year, with Parkinson's that doctor taps my knee
my leg jumped up, almost hitting him in the jaw, I wanted to flee.
He said that never happened before, lets get an MRI to see
I have another issue to add to my medical list for me
My entire brain is filled with white matter
The doctor began speaking, all I could hear was chatter
It's hardening of the arteries to the brain
I then began to hear and realized I can't complain.

 I feel so blessed for being here another day.
Thanking the Lord, as I pray.



Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)