About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, April 27, 2016

We are Complete Opposites


We are complete opposites, except for Parkinson's disease
The good thing about it, is sharing our lives, you see
We are in this together, loneliness is hard for you and me

Many of us, used to multitask and do all kinds of things

As the years have past, it is difficult even to sing

We live in different areas, but we have this connection
We have Parkinson's and there is no worry for rejection
Because no one truly understands the what we feel
Our friends, and love ones try, but they never will.

We, you and I, are together in this fight to slow Parkinson's down

Doing all that we can, to help one another to continue to be around
We may have days that we need one another's shoulder to lean on
Together we will help each other by doing when called upon.

Yes, we can be complete opposites, but we draw strength from one another.

With this thing called Parkinson's disease, we are warriors for each other!

Together, we can make a difference

Friday, April 15, 2016

We all have a beautiful light within



We All Have a Beautiful Light Within

We just sometimes forget it is there
We work hard to bring it out, to be fair
It is difficult for most, just to fight this disease

Our love ones hurt too, so help them feel at ease.
Place your hand in theirs, would you please?

This special moment shows that you care
Remember it is hard for them to see you when you are in despair
Don't even think just do it, you'll be surprised to feel the connection
By doing so, other's can feel that you still have affection.

Some of us may have a mask face, and unable to smile
Don't be ashamed, a slight touch or hug shows your not hostile
Let others know, that this is what Parkinson's can do
You may or not have those tremors too.

Some of us, have a difficult time trying to walk
We may freeze, or shuffle our feet, while some people may gawk
Don't be angry, without knowledge of this disease, 
Some people may think your drunk,  so don't get upset please

Feel proud that you are a warrior fighting to win
God's gift is that beautiful light that you have within

Monday, April 4, 2016

So Much To Do, So Little desire To Do It


Have you ever had these days?
For most of us with Parkinson's, this is how we feel in every way.
But in order to feel better and have more energy
We have to make ourselves move, or we will feel miserably.

I start each morning feeling blessed that I am here another day
I always thank our Lord each morning and night this is just my way

I like to turn the computer on, and exercise to Tai Chi
It helps me with my balance and it is good for me.
I like to take a walk or ride my trike too.
Exercise helps me rid myself of those Parkinson's blues

After completing these things, my meditation begins
Relaxing my mind and body, seeing myself flying in the wind.
Soaring high up in the sky, with  my wings spread so wide
I float down from the clouds and open my eyes.
What a wonderful day, I'm so glad I'm alive.