About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, September 9, 2015

When We Had Our Motor Coach



When we had our motor coach, we traveled many miles
We saw God's beautiful country, and saw nature in the wild.
I spoke to many people, sharing Parkinson's awareness, with a smile.

Many pamphlets from NPF, I passed out to all that were interested.
I hope all learned while I spoke, as well as the places we visited.

Our 10 pound maltese drew quite an interesting crowd
For many never saw a small service dog, as they gathered all around.
It helped to let many know what our dog does for me
I was able to tell them about my Parkinson's disease

I remember meeting a couple, the man had a mask face
He couldn't talk very good, but we sat and spoke for awhile.
He said he was ashamed of his mask face and prefer not to be around
I told him he didn't ask for it, so please stay for now.
He said that he was grateful, as I saw a small movement in his brow.
He showed me his photos, he has been taking
This is one thing, his wife said that keeps him from breaking.

I also became friends with a Deb, who is an artist
At Christmas, she gave me a painting that was her hardest
She finished it, with her Parkinson's being in full swing
To me, she is an angel, to care enough to finish this beautiful thing
The picture hangs to show all, she surely will be an angel with wings 

It is hanging straight on our wall, I didn't take a good photo of it.


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