About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, August 23, 2014

Dexterity and Parkinson's Disease

Many years ago before Parkinson's symptoms began,I went to a luncheon with a group of women. There was a large buffet and I picked up a chicken breast. Trying to act sophisticated, I thought I would cut it using my fork and knife, just as I began, the fork slipped and the chicken breast flew across the table into a women's lap. Fortunately she laughed and I apologized.  We all have mishaps before and after being diagnosed with Parkinson's. I  know that it happens more often for me now. But when something happens I don't get upset, I just deal with the situation and move on. Life is too short to worry about these little things. Please read the following:




How can I minimize embarrassing dexterity problems?

Dexterity problems can include fumbling for bills, change, and credit cards at checkout counters. Staying at home is a great temptation when your symptoms are showing, but it only deprives you and your spouse or friends of the pleasure of each other's company. And it isolates you. The truth is that few people will even notice your symptoms. A bad tremor while making change is taken for a momentary rattling. Knocking over a glass at dinner? Spilled soup? It happens to everyone.

How can I minimize embarrassing dexterity problems such as fumbling for bills, change, and credit cards at checkout counters?

Some Parkinson’s patients embark on an endless search for the perfect wallet, but the issue is not limited to money. Car keys, theater programs, church bulletins, a glass of wine, or a plate of food at a buffet — worse yet, both a glass and a plate. Everyone drops things. It just happens more frequently with Parkinson’s patients, who carry around this baggage of "disease" that seems to get a little heavier with each mishap.
Compensatory strategies can be helpful: A large wallet for easy access, counting change ahead of time, not using change, asking a friend to hold your drink while you steady a plate, etc. When you encounter a new problem, think about the best way to handle it the next time. And remember, dropping change is a symptom of your disease, not a reflection on your character. The more you are out and about, the more people will see you, and visibility means greater acceptance from others as well as increased confidence. Parkinson’s disease doesn't have to be a prison. Don't beat yourself up over these things. 

If I let this get me down, then Parkinson's wins, and depression sets in. Always 
remember, we all have issues with Parkinson's disease, you are not alone. 

Ref: MJF

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