About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, August 23, 2014

Humor

Laughter helps me, especially when I feel depression coming on.Or I drop something for no reason at all. I try to be upbeat as PD knocks at me, I push back with humor.You are never too old to act silly. At times I do silly things just like this:
Silly faces~ sometimes I act like a kid

Me Normally

Parkinson’s disease is known to many as progressive, chronic and debilitating. Muscle control declines, there is a loss of physical balance, and there is pain. The most effective medicines help people with Parkinson’s move better, but after a few years, the side effects often override the advantages. As dopamine disappears from the center of the brain, the inclination can be toward depression.
However, as people get to know their own life with Parkinson’s, there are many who see and feel another side of themselves. Parkinson’s causes moments of novel and surprising behavior, and sometimes brings out a rather dark sense of humor to which most people living with the disease can relate. It is said, “we learn to laugh at ourselves in our ‘Parkinson’s Moments’.”
Maintaining a light-hearted view of yourself in moments of struggle that can border on the ridiculous, observing the changes in life with a sense of humor, and sharing these reactions with others can help you feel “human” – “normal” even – when things might be a far cry from the normal you used to know.

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