About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Sunday, July 20, 2014

Things that I try to overcome, but Parkinson's is catching up.


In the past I was known as a person that multi-task and was quick to answer.
As time has past now. I do one thing at a time to finish that project before I can move on to the next. By doing this I am able to feel confident, that I have completed that one job.
I have also found while I may be talking about something and I know the answer and it is on the tip of my tongue, but for the life of me I  can't produce the word. This use to really upset me. " I now say, I am sorry but I can't think of the word that I was about to say." My friends and family are understanding.
I no longer drive a car because  I don't have a sense of direction and I can't think and react fast enough hitting the breaks to avoid an accident.
Thankfully my husband understands, and takes me where I want to go.
I feel in my heart that my Parkinson's is becoming more noticeable and I am becoming slower as time passes.My rigidness is becoming more noticeable.

 I continue to fight this disease .I practice my mind with word games, puzzles and reading. I meditate and exercise, my body to become less rigid.
I am so thankful when I wake up in the morning and God has blessed me with another wonderful day.
There are so many people that are worse than me. I have good doctors, great friends and an outstanding family.

 As long as my family hasn't given up on me, that is the  most important thing that keeps me going. I love them dearly. 

 Our children & grandchildren.









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