About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Thursday, July 17, 2014

Can you Smell?




I haven't been able to smell for a long time. While it could be to my advantage, but it is and can be a problem. Food doesn't taste the same.  Once in a great while, I smell something that has an odor, but I can not tell what it is. At times I crave some food but when I get it,  it does not taste as good as I remember it. I wrote in the past about my iron burning and my service dog warned me, since the burning started in the inside of the iron, before the flames and smoke showed. God was watching over me that day.
This is just a part of my Parkinson's disease. It is something that I have adjusted to. Not everyone with Parkinson's disease has the problem of not being able to smell.





Why am I losing my sense of smell?

Little is confirmed about what causes the early, pre-motor symptoms of Parkinson’s, such as hyposmia, this loss of smell. But one prevalent theory in Parkinson's research about disease progression has to do with the protein alpha-synuclein, whose clumping is found in all people with the disease.
This theory, based on the research of Heiko Braak, MD suggests that the disease may start not in the substantia nigra (the region of the brain where loss of nerve cells leads to the dopamine deficit experienced by people with PD) but in the gastrointestinal system and the olfactory bulb, the part of the brain that controls sense of smell. Researchers have hypothesized that the alpha-synuclein clumps found in all people with Parkinson's may form in these parts of the body first, before migrating to other parts of the brain. Should this turn out to be true, and if researchers can find the clumps and break them up before they reach the brain, it may become possible to treat Parkinson's before major neurological damage occurs.


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