About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, July 30, 2014

DREAMING AND DOING



 A friend sent me this picture. I want to share it with you.

 We live in a Golf Cart Community. This is a good idea for those who get around in their power wheel chairs.

 I could haul my dog or grandkids around. If I got tired, I could take a break and sit inside to cool off in the air-conditioned camper.It looks funny and probably impossible.


I wonder if I could attach my wheelchair to the hot air balloon and fly up and over our community.  I  could be floating across the sky  with the birds. That would be a beautiful thing to see.
I could then land and drive back home.

 Taking a few minutes and let your mind wander and dream of things that are silly, but fun. This helps to overcome depression and to make you feel good.

 If you are the type that needs to do things physical but are limited because of a walker, or wheelchair. You can sit and play some sports. Contact the YMCA 
and ask if they have any people that are wheelchair patrons that are involved in sports.If you are nervous about calling. Then write an email asking.

 Or maybe you like to sew, knit or do another craft. Check in your community if they have a sewing, knitting or other craft club. Do things that you are able to do and enjoy doing it.

 Or maybe you always wanted to try something new. Just try it, you maybe surprised of how good you really are.

 Sometimes ~ you have to take the first step, to take charge in getting the information and by getting involved.

Life is too short to sit around and do nothing. Get involved, join a group on-line and in your community.
If you want to contact me just leave a comment and your email address. I will contact you .

 I am willing to open up a support group site on the web if you want. Just let me know.







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