About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Friday, July 11, 2014

I'm Not Clumbsy



With parkinson's disease, sometimes we loose our balance, we look like we are clumsy, or drunk.

 There are times, we freeze and unable to move, or we shuffle when walking. Some people quickly turn away, not wanting to stare. 

 I have been in a public place and have lost my balance and have fallen. For me, I feel more embarrassed than anything. I am thankful that I haven't broken my hip or anything else.
Falling does hurt. We aren't as limber as we once were. 

 If we go to a restaurant and we are there for a while, I have are hard time getting up, especially if we are in a booth. My husband has to help me rise from my sitting position. People look as if to say, she was able to sit down by herself, why can't she get up by herself.

 There have been times, I begin to choke and my husband taps on my back and I am ok. I am fortunate that I have been able to swallow when he does that.
He also knows CPR and what to do if needed.

 Sometimes, I want to wear a sign. I have Parkinson's Disease ~ I  am not drunk, I am not faking what is wrong with me. I am doing the best that I can.

 When shopping in a mall, I have had people come up and ask me to smell the latest perfume ~ I have to say, no thank you ~ because I can not smell.

 I have been places and I walk too slow using my cane. People are behind me and all of a sudden pass by real fast, which has caused me to jump. Some have been rude and laugh, while others just continue walking fast.

 I have had dental problems, because of dry mouth.
I have had eye problems because of dry eyes.

 I can go on and on, but you know what. I am blessed.
I may not be able to walk that good, or do some of the other things,
but I can dance.

 Life has it's Ups and Downs and so far I have more Ups than Downs.















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