About me
As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.
Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.
Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.
I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.
When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.
But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .
Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.
I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.
God Bless,
Margie
Larry & Margie
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Thursday, July 31, 2014
Parkinson around the World
Wednesday, July 30, 2014
DREAMING AND DOING
A friend sent me this picture. I want to share it with you.
We live in a Golf Cart Community. This is a good idea for those who get around in their power wheel chairs.
I could haul my dog or grandkids around. If I got tired, I could take a break and sit inside to cool off in the air-conditioned camper.It looks funny and probably impossible.
I wonder if I could attach my wheelchair to the hot air balloon and fly up and over our community. I could be floating across the sky with the birds. That would be a beautiful thing to see.
I could then land and drive back home.
Taking a few minutes and let your mind wander and dream of things that are silly, but fun. This helps to overcome depression and to make you feel good.
If you are the type that needs to do things physical but are limited because of a walker, or wheelchair. You can sit and play some sports. Contact the YMCA
and ask if they have any people that are wheelchair patrons that are involved in sports.If you are nervous about calling. Then write an email asking.
Or maybe you like to sew, knit or do another craft. Check in your community if they have a sewing, knitting or other craft club. Do things that you are able to do and enjoy doing it.
Or maybe you always wanted to try something new. Just try it, you maybe surprised of how good you really are.
Sometimes ~ you have to take the first step, to take charge in getting the information and by getting involved.
Life is too short to sit around and do nothing. Get involved, join a group on-line and in your community.
If you want to contact me just leave a comment and your email address. I will contact you .
I am willing to open up a support group site on the web if you want. Just let me know.
Tuesday, July 29, 2014
Thousands of Reasons
Monday, July 28, 2014
Life Isn't Meant To Be Easy
Sunday, July 27, 2014
Friends are Family One Finds Along The Way.
We Never Give In
We just can't lie and wait,
just to rely on fate.
Please remember you are not alone.
We can make a difference you and I.
By exercising our bodies and minds
Taking our medicines on time.
Let's share our laughter and our smiles
showing all, that life is worthwhile.
God Bless, dear friend!
Friday, July 25, 2014
Life Should Not Only Be Lived, It Should Be Celebrated
I am celebrating LIFE !
I could be feeling sad but I don't have time for that, I want to live and celebrate how wonderful life is. I want to share and show people that I care.
So as I meditate and exercise before I begin my day. I look and I really look at how beautiful it is. I see the birds and as I look at our pond there are the ducks.
Life is such a precious thing and to see this beauty , wow!
Having friends and family is a gift and I am so thankful for that.
Having all of this, why would I ever want to give up?
So please join me, whatever illness you have and celebrate the good things. It won't make you well, but it will help you feel a little bit better!
Come on , you can do it, put a smile on your face as you begin your day.You will feel better and others around you will feel the same.
Wednesday, July 23, 2014
Parkinson's Disease and Our New Talents
So many of us for one reason or another after being diagnosed with Parkinson's have found that they can do things that they never could before.
Some people write stories and have books published, while others found their skills in drawing, painting, making jewlery, sewing and etc. There are so many talented people. I don't know why, but it is wonderful to see.
Although I don't have a noticeable tremor, I can no longer do cake decorating, my hands aren't steady enough for that. I do enjoy writing and sharing. What I enjoy most is being with people and sharing what I have found and researched about Parkinson's Disease.
I used to be shy in front of an audience but now although still nervous, I am planning to conduct two seminars on Parkinson's Awareness at our theater. The tentative schedule is for November 6, 2014 and March 5, 2015.
I have ordered pamphlets to pass out, to share with the audience.
Knowledge is so important and the more people learn about the disease, the more they will understand what the symptoms are and not be afraid of going to the doctor, if they have any of the systems.
No one has to wonder
About Parkinson's disease.
Knowledge is power,
No one has to fear
The tulip is our flower,
a symbol for us to wear
Drums Aren’t Just for Music: They’re Therapy, Too
Drums Aren’t Just for Music: They’re Therapy, Too
“She went back to the drum circle the next month and found the same sequence of emotions she experienced the first time: anger, sadness, joy. After nine months she said that all of her anger and sadness had disappeared.”
Self Help
We have discussed these two items:
1. Being rigid ~ To help limber out body ~ we exercise.
2. Depression ~ Listen to music, go outside in the sunshine, mile, meditate and if all else fells, call the doctor.
How to help ourselves to prevent falling.
1.Trying to stand up from a sitting position:
Take your time some people try to get up too fast and they get dizzy and fall.
The easiest way without someone helping, at least for me, I use both my hands and this helps me to steady myself by putting my hands on each side and press down to help me scoot my bottom up to the edge of the seat. I then push myself up. If there are arms on the chair, use those arm to help you push up and steady yourself so you don't fall.
2. Use a Walker, Cane or a Wheelchair if needed.
3. Remove throw rugs or tape them down so you don't trip.
4. Have night lights in each room if you must get up during the night.
5. Have support rails in the bathroom shower, toilet and tub. You may want a seat placed in the shower or tub as well.
6.Wear comfortable shoes and please, ladies no heels.
Safety First
If cooking , have baking soda near by to put out a grease fire.
May want to have a emergency button (neckless or bracelet) to insure that help will arrive if needed. Like we see on the commercials : help, I've fallen and I can't get up!
I am not recommending one alarm system over another, just showing you an example. Remember: You are worth it. You don't want to fall and break a hip or have a concussion.
I care.
Tuesday, July 22, 2014
Good Morning!
Or I will have to use my walking stick.
I decided to do some stretching, hoping that may help
I am glad the medicine and the exercise did wonders for myself.
I pray that your day is a good one
and you are happy as can be.
Life is enjoyable for both you and for me.
God Bless !
Sunday, July 20, 2014
A Special Day For Me.
Things that I try to overcome, but Parkinson's is catching up.
I continue to fight this disease .I practice my mind with word games, puzzles and reading. I meditate and exercise, my body to become less rigid.
As long as my family hasn't given up on me, that is the most important thing that keeps me going. I love them dearly.
Our children & grandchildren.