We are a Team

I know everything will be alright,

Since we're a team in this fight.

So remember, you're not alone, 

I will be near, just use the phone

Every challenge that we face, 

We manage it, with so much grace. 

Life is too short, to simply waste, 

Although we are slow, don't move with haste.

Sometimes there are things, we don't approve, 

We're in control, we may change and improve. 

Life is here, for us to explore, 

Think positive thoughts and you shall get more. 

With Parkinson's in our life, we struggle and suffer, 

Those experiences just make us so much tougher. 

Our struggles teach us, more than words could say, 

They help make us, the person, we are today.

Certain things will never go back to how they used to be.

Certain things will never go back to how they use to be, before PD.
Just like I will never be as young as I was before this day.
I choose to do whatever works for me  to slow down Parkinson's disease.
I will not look at life as if it is dreary and gray
I thank God, for giving me another day.

I am unable to stand upright, I shuffle when I walk
My muscles are rigid and ache
Some days my voice is a whisper when I talk.
I want to have some control for pete sake.
I am not giving up, I fight this each day
I try to slow it down and wish it would go away.

I count my blessing
So many are worse than me
I was given a second chance you see.
There were worse times in the past
My face looking like a mask
My husband had to roll me over in bed
and help me in almost everything I did.

I began exercising a little each time
Helping me to feel alive
Each day I continue to do more
Before I knew it I began to soar.

I am proud of my accomplishments.
My MDS was filled with astonishment.
I smile as I exercise and meditate each day.
Thanking God as I pray.

HOPE

When you try to smile,
Life becomes worthwhile
You begin to feel good
The way that you should.

Our brains are such of a mystery.
One day the answers will be history
We all are special you and I
Let's set our minds, wanting to try
by moving our bodies to the musical beat
we will loosen up and feel so sweet.
Hopefully, tonight we will be able sleep

Sometimes we feel like quitting
I just don't want to be sitting.
I want to fight this thing
called Parkinson's disease

Please don't shed a tear
We will always be near.
Showing that we care

Knowing we are in this together
Just like birds having feathers

At times it is hard to cope
What keeps our spirits up is Hope.

Reality can be Funny.

How wonderful if you are fortunate to have someone to hug you when you have the blues.
Whether you have a partner, friend or family member
does help knowing that someone cares.
If you are alone and  have no one, please give yourself a hug, and I am giving you an e-mail hug
now.


We are together you and I, wishing Parkinson's disease would be banished.
If I had a magic wand I would use it and make Parkinson's vanish.
But reality hits and the only way to make me feel better is to use my true grits.
By fighting it through exercise, meditating and positive thinking.
I also try to help my weak voice, by joining a chorus group and singing.

For many years I have lost my sense of smell,
while others can smell real well.
I don't know if it is good or bad
depending what you smell.
When my dog farts,
my grandkids giggle and part.

Occasionally, when I have to pee
All of a sudden I have to go,
there is no holding back the flow.
It can be embarrassing, believe me I know.
Now I know why they sell those adult diapers called Depends.
You never know when you could loose control, it just depends.

Sometimes I freeze, and am unable to move,
At first my grandkids thought, I was playing the game 1 2 3 Red Light.
It was funny and it put me in a good mood.

Having Parkinson's and getting a little older
is a pain in the you know what.
Especially, when I have the grandkids, and one goes in the bathroom
and all of a sudden one yells, grandma I'm done.
I think ok, your done, why tell me and the other one says, that means you have to wipe him.
I knew there was a reason why my posture is bent over, I no longer smell and I occasionally freeze.
Lucky me !

Believe in Yourself!

Believe in Yourself.You are special.
You deserve to be what you vision you can be.
You can help slow down Parkinson's Disease
a fraction at a time or stay as you are
The choice is up to you.
You can be your very own star.

If you try to move your body
and you can only move it a little
Be proud that you did it.
I believe in you!
I know you can
I am your number one fan!

As each day passes
you will do a little bit more
It may sound like a chore
Your muscles will get stronger
You may ache a little longer
Move your arms
Reach for the stars
Move your hips in the middle
You are beginning to wiggle.
Stay with it and don't surrender
I will be there as your defender.

Each day you will see
The beginning to slowing  down Parkinson's disease.
You are beginning to be,
the person that you envision
You will continue this as your mission.

I am proud of you
I know you can
I am your number one Fan!

Slow down Parkinson's Disease

My goal is to slow down Parkinson Disease.

It is hard work to fight and to seize

control.

I will not let it take my soul.

I will fight it with all my might.

Pushing it out of sight.

I also fight the Parkinson's blues

by being outside in the sunlight

Feeling as if everything will be alright

Hopefully, this helps you too.

Depression is very hard to carry

You may need to see a doctor

and it may seem scary

But you don't want to go off your rocker.

I believe in exercise my mind and body

Thinking positive thoughts sounds shoddy

I really care and I give a hoot.

I would love to take Parkinson's and give it my boot.

The New Year 2015

A New Year 2015

As I watch the ball drop in New York on the TV.
I am so thankful for being me.
I remember when I was healthy as can be
Sleeping through the night, full of energy,
Then came the news, I felt like my life was in jeopardy.
Parkinson's disease,  first relief of knowing it had a name and then shock.


All I want to do is scream
Please God it must be a dream
Later on my sorrows became anger.
I remember crying and asking God. Why me?
Don't you think I have suffered enough,
Remember, the severe asthma attacks, the neglect and abuse 
I realized there was no excuse.
The drinking, the fires, the fighting throughout my childhood.
The upcoming country stars , drinking and playing their songs
While my mother sang, we hid like we didn't belong.

I grew up in a Jekyll and Hide family.
Full of secrets, and acting as if all was fine.
When my parents were good they were really good.
I learned to overcome the horrors of my childhood.

I have lost my bone in my lower jaw. after many surgeries, 
my lower teeth were lost and a lower denture implant.
In my brain a blood clot burst in one of my arteries.
Causing a major stroke, paralyzing my left side you see
But through a year of hard work, I am back to 99% of me.
Then a major car accident,  I died for a few seconds, 
and the pain within to come back and live, 
instead of being in heaven.


And now this, Why me?
Then I heard my mothers voice, saying why not you. 
God knows you will not give in 
Knowing that you will fight till the end.
You can give in and let PD take over, 
Don't rely on the luck of a 4 leaf clover.
or you can do everything to take control.
I am a fighter and I will be whole
while fighting Parkinson's disease
I have dystonia of my calves and feet
Botox has been a big help to treat.

Each day, I wake up and thank God for letting me stay.
I wish that I could throw Parkinson's disease away.
But I am thankful for doing everything
to keep Parkinson's in it 's place
I know that I am slow, and can't run a race.
Exercise and positive thinking is the key, 
so I don't give up on me.

Then I am hit with two more major blows,
I have hardening of the arteries in my entire brain, 
no where else in my body.

I have severe osteoporosis in my pelvic, neck, hips and spine.
I want to say and believe that all will be fine.
I have had many things happen to me, 
but I worked through them to feel as positive as could be.
I have overcome severe depression,
I know how to stop it in it's tracts 
when it tries to come back.

I would like to run and take a trolley 
to feel the wind blowing through my hair
I wish that I could erase the past and 
act like I didn't have a care.
But then reality sets in. 
I know how bad things can be,
but I also know how wonderful it can seem
I try to think positive and throw away the negative.
Even if it seems repetitive.
I will always live with love in my heart.
I will not give in until that day arrives and I must part.