About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Thursday, January 1, 2015

The New Year 2015

A New Year 2015



As I watch the ball drop in New York on the TV.
I am so thankful for being me.
I remember when I was healthy as can be
Sleeping through the night, full of energy,
Then came the news, I felt like my life was in jeopardy.
Parkinson's disease,  first relief of knowing it had a name and then shock.


All I want to do is scream
Please God it must be a dream
Later on my sorrows became anger.
I remember crying and asking God. Why me?
Don't you think I have suffered enough,
Remember, the severe asthma attacks, the neglect and abuse 
I realized there was no excuse.
The drinking, the fires, the fighting throughout my childhood.
The upcoming country stars , drinking and playing their songs
While my mother sang, we hid like we didn't belong.

I grew up in a Jekyll and Hide family.
Full of secrets, and acting as if all was fine.
When my parents were good they were really good.
I learned to overcome the horrors of my childhood.

I have lost my bone in my lower jaw. after many surgeries, 
my lower teeth were lost and a lower denture implant.
In my brain a blood clot burst in one of my arteries.
Causing a major stroke, paralyzing my left side you see
But through a year of hard work, I am back to 99% of me.
Then a major car accident,  I died for a few seconds, 
and the pain within to come back and live, 
instead of being in heaven.


And now this, Why me?
Then I heard my mothers voice, saying why not you. 
God knows you will not give in 
Knowing that you will fight till the end.
You can give in and let PD take over, 
Don't rely on the luck of a 4 leaf clover.
or you can do everything to take control.
I am a fighter and I will be whole
while fighting Parkinson's disease
I have dystonia of my calves and feet
Botox has been a big help to treat.

Each day, I wake up and thank God for letting me stay.
I wish that I could throw Parkinson's disease away.
But I am thankful for doing everything
to keep Parkinson's in it 's place
I know that I am slow, and can't run a race.
Exercise and positive thinking is the key, 
so I don't give up on me.

Then I am hit with two more major blows,
I have hardening of the arteries in my entire brain, 
no where else in my body.

I have severe osteoporosis in my pelvic, neck, hips and spine.
I want to say and believe that all will be fine.
I have had many things happen to me, 
but I worked through them to feel as positive as could be.
I have overcome severe depression,
I know how to stop it in it's tracts 
when it tries to come back.

I would like to run and take a trolley 
to feel the wind blowing through my hair
I wish that I could erase the past and 
act like I didn't have a care.
But then reality sets in. 
I know how bad things can be,
but I also know how wonderful it can seem
try to think positive and throw away the negative.
Even if it seems repetitive.
I will always live with love in my heart.
I will not give in until that day arrives and I must part.








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