About me
As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.
Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.
Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.
I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.
When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.
But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .
Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.
I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.
God Bless,
Margie
Larry & Margie
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Wednesday, January 7, 2015
Reality can be Funny.
How wonderful if you are fortunate to have someone to hug you when you have the blues.
Whether you have a partner, friend or family member
does help knowing that someone cares.
If you are alone and have no one, please give yourself a hug, and I am giving you an e-mail hug
now.
We are together you and I, wishing Parkinson's disease would be banished.
If I had a magic wand I would use it and make Parkinson's vanish.
But reality hits and the only way to make me feel better is to use my true grits.
By fighting it through exercise, meditating and positive thinking.
I also try to help my weak voice, by joining a chorus group and singing.
For many years I have lost my sense of smell,
while others can smell real well.
I don't know if it is good or bad
depending what you smell.
When my dog farts,
my grandkids giggle and part.
Occasionally, when I have to pee
All of a sudden I have to go,
there is no holding back the flow.
It can be embarrassing, believe me I know.
Now I know why they sell those adult diapers called Depends.
You never know when you could loose control, it just depends.
Sometimes I freeze, and am unable to move,
At first my grandkids thought, I was playing the game 1 2 3 Red Light.
It was funny and it put me in a good mood.
Having Parkinson's and getting a little older
is a pain in the you know what.
Especially, when I have the grandkids, and one goes in the bathroom
and all of a sudden one yells, grandma I'm done.
I think ok, your done, why tell me and the other one says, that means you have to wipe him.
I knew there was a reason why my posture is bent over, I no longer smell and I occasionally freeze.
Lucky me !
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