About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Tuesday, June 21, 2016

Life Has Knocked Me Down


I have been knocked down, many times in my life
Through the Lord,  I know I will be alright.
I can still hear my Mom's voice, saying get up and move
I listen to the voice, and know that I will improve
But if I give up and do nothing with my body and mind
Then I would be selfish to God, and my love ones, left behind

 I have this will power that does all that is possible
I realize that life is short, I am unstoppable.
Often, having  to repeat my words and still it was inaudible.
With my continuous practice, now my clear voice is possible.

 Each day upon rising, my body is stiff and I am weary
But with medicine, exercise and faith, I move and think clearly.

 I have fallen many times but able to get up, sometimes with assistance
While people stared and whispered, keeping their distance
Some people may think that I probably had too many drinks
I just continue shuffling, not worrying what others may think

 I have my 10 pound maltese service dog with me
He assists me, when I have an emergency or freeze
Some people question, whether he is a true service dog
If I didn't need him, would I make him walk along?

 I have my MDS doctors prescription for him as well as his certification
They don't care what he does, being small is apparently their fixation
I explain,  since I am unable to smell, because of loss of dopamine in my brain
He saved me from an electrical fire in my iron, before it burst into flames.

 Yes, I have things wrong with me, as many do
I will continue to get up and will not be blue.
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