About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, June 25, 2016

Being slow is no excuse.



I may move slow, but I will continue to move this old wobbly body of mine
If I have somewhere to go, no matter what, I am always running behind
I begin getting ready, but I have to sit, for awhile
Upon finishing, I look into the mirror, and give myself a great big smile.

Wow, I have accomplished my task having plenty of time
As I shuffle to the garage and got into the car for hubby to drive
He said we have plenty of time what shall we do
Let's just drive around, since we don't have a clue

The time is near, so we arrived at Sam and Jan's home
No one answered the door, we felt all alone
We checked our I-phones and there were no messages
We walked around back and no one was on the premises.

I looked at my I-phone, and read the invitation
All is correct, I could see my hubby's frustration
He called Sam to see what has happened
They pulled up in the driveway, they had to picked up aspirin
He said you are normally running late.
We thought we had time, I am sorry you had to wait.

How often have Sam and Jan had to wait because of me.
By being late, I blamed it on my Parkinson's disease
They never complained or abandoned me, I actually see
Learning from my selfish act, Parkinson's was winning
I realized that my daily routine was just the beginning
I am on time for everything now, and I won't be defeated.

We should treat everyone, the way we want to be treated.

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