About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Tuesday, June 9, 2015

What does permanently disable actually mean?




What does permanently disable actually mean?

According to the dictionary;

Permanently disabled: 
forever, for all timeforevermorefor goodfor always, for ever and ever(for) evermore, until hell freezes overin perpetuityindeliblyimmutablyuntil the end of time.

Parkinson's disease is a progressive incurable disease. Hello to all of the Government Officials. You are wasting our time, money and making problems to have our doctors take from their busy schedules to fill out these forms each year or so. More forms, more wasted government time and tax payers money.  


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I have been permanently disabled and living in Florida for many years
I guess our government officials know more than I do, it appears
because every year or so forms need to be filled and signed by a Doctor
With my monthly small disability check, Maybe I can become rich and prosper.

It is time to renew my disable parking permit, more forms, more stress.
Are they trying to help me to begin to regress?
I do all that I can to fight this PD
but when ignorance begins to follow me
what do I say, wake up, this is a progressive permanent disease.

So please join me and write to our representatives
I really don't want to be argumentative
I want them to know this has become repetitive
Asking them to look at this sensibly.



Thank you!
To contact your Representative:

http://www.house.gov/representatives/find/#listrep


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