About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

Translate

Friday, June 5, 2015

Smile




Sometimes your joy is the source of your smile,
but sometimes your smile
can be the source of your joy.
- Thich Nhat Hanh

Inner Smile Exercise:
1. Close your eyes.
2. Breath slowly, deeply, and consciously.
3. Set the corners of your mouth in just the slightest smile.
4. Visualize your smile growing larger and larger, and your happiness increasing. 

A smile that begins as an effort and a pretense
quickly grows to become genuine,
and given time, a habit of happiness. 

Although it is always better to live with conviction and enthusiasm,
some days it is better just to go through the motions than to do nothing.
Smile even when you feel grumpy.
Meditate or Pray even when you have nothing to say to God.
Cook a healthy meal even when you are tired.
Walk or exercise even when the thought doesn't excite you.
- Jonathan Lockwood Huie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I smile because that is apart of me
It's the only way I know how to be
I hope I will continue to have this expression
Parkinson's has a way of putting me in regression
I will do all that is possible to slow down Parkinson's disease
I am fortunate after all these years, my tremors you barely see
Although my walk is like a shuffle at times
but when my meds are working, I look fine.

I have an inner tremor, few can see
It's in my throat and mouth,
That's quite aggravating for me.
At times I bite my tongue and I say ouch.

There are so many friends that I've met through the years
We sometimes chat, inspire and wipe each other's tears.
I can not remove this disease of mine
but I am able to smile and act just fine.

No comments:

Post a Comment