About me
As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.
Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.
Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.
I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.
When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.
But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .
Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.
I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.
God Bless,
Margie
Larry & Margie
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Monday, June 29, 2015
Time passes
As time passes, I could just sit day in and day out
But that's not what I am all about.
I want to have fun and enjoy all that is possible
Parkinson's disease for me is just an obstacle
I exercise my body and mind
So that I may feel mighty fine.
I can't say that it works all of the time
But it seems to slow it down for now.
Thinking positive works somehow.
I enjoy dancing but at times, I fall
I get up fast and act like it's nothing at all.
Listening to music and feeling the beat
It makes me happy and it's really neat
Swimming is a great exercise in the pool
It's a wonderful way to stay nice and cool.
Thursday, June 25, 2015
Always Help Someone
Always help someone, you may be the only one that does.
Even if you are physically unable, give them a buss.
Talking on the phone to insure that all is well
This will brighten their day, by talking for a spell.
Talking to someone makes the both of you feel good.
Caring about others, and do what we should
Life is too short to sit around and be alone
You don't want to be considered an unknown.
Live your life to the fullest and have fun
You may go slow, you don't have to run
You can play checkers, or cards to win
Even if you loose you can still have a grin
You never know, you may make a friend.
This could be a wonderful new trend.
Sunday, June 21, 2015
Imagine Yourself Happy!
Imagine yourself happy and you'll begin to feel better
Take a walk and enjoy the good weather
Listen and you will hear the sounds of nature
You may even say hello to your neighbor.
There is so much energy, so grab it and enjoy
Be positive and maybe you can explore
Walk along a lake and you may see,
turtles and ducks, and feel the breeze
Upon returning, you will feel free
of the negativity, deep inside of thee.
You'll begin to feel that you have achieved
Give yourself time, and you will believe.
Friday, June 19, 2015
Empower Yourself
I will never give up or give in until the very end
If I shall fall, I'll get up and try it again.
I did not ask to have Parkinson's disease
But for some reason, it is now apart of me.
There are times, my Parkinson's comes out
I do all that I can to move about
Sometimes I shake, shuffle and move slow
That's when I feel that I need to shout
Please don't stare, I am not in a circus show
I live my life the best way possible
I fight this disease, feeling unstoppable
The Lord has blessed me and I am alive
This gives me that inner drive
I don't sit back and feel like giving in
There's so much I want to do, I want to win
I reach for my inner strength to begin
By exercising, meditating with a big grin.
I am fully aware of what the future may hold
But I will fight this until I am dead and cold
Life gives me challenges that I must face
I can overcome these with God's grace.
My love of God, I know there's a better place.
When that time comes, I'll have a grin on my face.
Sunday, June 14, 2015
Believe!
Remember to exercise your body and mind
Thank the Lord for being with you all of the time.
Wednesday, June 10, 2015
Life is full of our highs and our lows
Let's sing and shout to all that can hear
We have Parkinson's, there is nothing to fear.
Yes we may freeze, stumble or even fall
We brush ourselves off and act like it's nothing at all.
Sometimes we laugh and sometimes we cry
We are here to help, so please dry your eyes.
We are determined to slow this disease
By exercising and playing whatever we please
By making a commitment to be each other's friend
We are here in this together until the very end.
It would be fun to go to an adult camp for people like us.
We could exercise, learn and share our stories until we bust.
This would be an encouragement camp, to give us inspiration
They would even take care of all our transportation.
It would be wonderful, if this dream were true
But it's a thought, I wanted to share with you.
Tuesday, June 9, 2015
What does permanently disable actually mean?
What does permanently disable actually mean?
According to the dictionary;
Permanently disabled:
forever, for all time, forevermore, for good, for always, for ever and ever, (for) evermore, until hell freezes over, in perpetuity, indelibly, immutably, until the end of time.
Parkinson's disease is a progressive incurable disease. Hello to all of the Government Officials. You are wasting our time, money and making problems to have our doctors take from their busy schedules to fill out these forms each year or so. More forms, more wasted government time and tax payers money.
Sunday, June 7, 2015
One day at a time.
One day at a time is what I do
Especially with those Parkinson's blues
I know it's hard, I just need to smile
Just complaining is not my style
I went for a stroll with my dog by my side
I looked a wreck, and I wanted to hide
I saw people staring at me, as I said hi
They continued to stare as I walked by.
On my way home, They were still there
I stop to ask, what was wrong, why did they stare
They were concerned seeing me this way
I said, I was not myself this very day.
I went home and looked in the mirror
I see what they saw and it became quite clearer
I put sunscreen on my face, and forgot to rub it in
I looked like a zombie with that ashen skin.
Apparently they called my hubby to come home
Thinking there was something wrong
I was in the bathroom washing my face
My husband rushed in, like he was running a race
I told him what occurred, and laughing as well
He said it's not funny, I thought you fell
I said all you had to do is call me on my cell.
I contacted everyone and expressed my appreciation
Living in our community is such and inspiration!
Friday, June 5, 2015
Smile
Sometimes your
joy is the source of your smile,
but sometimes
your smile
can be the
source of your joy.
- Thich Nhat
Hanh
Inner Smile
Exercise:
1. Close your
eyes.
2. Breath
slowly, deeply, and consciously.
3. Set the
corners of your mouth in just the slightest smile.
4. Visualize
your smile growing larger and larger, and your happiness increasing.
A smile that
begins as an effort and a pretense
quickly grows
to become genuine,
and given time,
a habit of happiness.
Although it is
always better to live with conviction and enthusiasm,
some days it is
better just to go through the motions than to do nothing.
Smile even when
you feel grumpy.
Meditate or
Pray even when you have nothing to say to God.
Cook a healthy
meal even when you are tired.
Walk or
exercise even when the thought doesn't excite you.
- Jonathan
Lockwood Huie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I smile because that is apart of me
It's the only way I know
how to be
I hope I will continue to have
this expression
Parkinson's has a way of putting me
in regression
I will do all that is possible to
slow down Parkinson's disease
I am fortunate after all these
years, my tremors you barely see
Although my walk is like a shuffle
at times
but when my meds are working, I
look fine.
I have an inner tremor, few can see
It's in my throat and mouth,
That's quite aggravating for me.
At times I bite my tongue and I say
ouch.
There are so many friends that I've
met through the years
We sometimes chat, inspire and wipe
each other's tears.
I can not remove this disease of
mine
but I am able to smile and act just
fine.
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What do some disabilities look like?
Tuesday, June 2, 2015
What happened?
I used to be limber and loved gymnastics
Especially with the vault, I did fantastic
But that has been quite a few years ago
To see me now, you would never know.
Throughout my life I continued to go to the gym
I enjoyed taking classes in jazzercise or just swim
But then things changed as time has past
Parkinson's came and I was aghast.
I learned that I wasn't alone
All I had to do was pick up the phone.
I am rigid and stooped over some
But I won't give in, that's my rule of thumb
I exercise daily to slow down Parkinson's disease
There are times I get short winded and wheeze
I can't complain, there are others worse than me
Hopefully, one day a cure will set me free