About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Sunday, September 28, 2014

Never Give Up




The day I was told I had Parkinson's disease
I was relieved and yet in shock, not knowing what it actually was.
I was told years before that my mild tremors were nerves, by quite a few different military doctors. Those years have passed and now after being diagnosed over 10 years ago. I have accepted it.
I will do all that I am able to fight Parkinson's disease.

I begin my day by walking out on my lanai and seeing the heron by the pond's edge trying to catch fish in the water. Oh what a sight.
I heard a noise by the side of my lanai. I go out to see what it is. Oh, it's a turtle moving slowly to get back into the pond.
The sun is shinning and it is quite humid outside already this morning.

I decided to go inside to meditate for a while and then I begin my tai chi exercises.
I hope you are moving too. This helps to fight the stiffness of Parkinson's disease.
It does not matter if you are moving slow, the most important thing is to not give up.

We are in this together, you and I
All we can do is fight Parkinson's
by exercising our minds and body.
We must take care of ourselves
and keep ourselves from getting ill.
Maintain a healthy diet. 
Take our medicines on a timely schedule.
Remember to get your flu shot annually.
Put a smile on your face and keep a positive outlook.
Life is precious and live it to the fullest.
I plan to and I hope you do too.
May God watch over you.





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