About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Sunday, December 31, 2017

Believe, You Can Do It!



I wake up in the morning and have trouble getting up out of bed,
Thanking God for another day. I move slowly and take my meds.

I start my day by stretching and lifting small weights
This helps to relax my muscles, to begin doing the figure eight
No not on skates, but riding my tricycle, since the weather is great

Upon arriving back home, I go out on the lanai to meditate
Relaxing my body and mind, I needed this to rejuvenate.

There are times, when it is hard to continue to cope
But this voice inside, says there is always hope

Always, within me, I feel the joy.
Just like a kid, in the toy store
Life has many ups and down
This is no reason to sit and frown,

I tell myself, don't give in, this is not the time to quit
The will power in many of us, is called true grit.

Believe, You can do it!


Sunday, December 10, 2017

Our Christmas Ball of 2017





I was all dressed up and off we went to our Christmas Ball
For the very first time, we were early and waited until our name was called
The dinner music was perfect, while we ate.
Then the music changed, and the dance music was great.

My husband and I danced away, as we felt the beat
All of a sudden, I felt odd, and we went to our seats
I had a hard time breathing as I missed the chair
My husband caught me and laid me down, I needed air

I heard my husband saying, please give her a chance to catch her breath
She has Parkinson's disease and asthma, this isn't a sudden death
Please make room so that she can get air, this happens sometimes
Two doctors were there and a nurse, taking my pulse, I was fine

Yes, this happened to me last night
Sometimes, I want to hide out of sight
But I tell myself, don't be embarrassed
My faith in God, I continue to cherish

I didn't want or plan on this happening
I am thankful for not panicking.
God sent those medical people to be by my side
I am fortunate to have them as neighbors, I must confide

I thank the people who wanted to help me
God has blessed me, I am so thankful to thee





Saturday, December 9, 2017

Christmas is a special time


So many memories, I have from the past
But things have changed, and time is moving fast.
I am not as young as I used to be
I can't do the things, or move as free
Parkinson's gave me a strike you see

But I am not complaining
I just felt it needed some explaining.
As time has past, my symptoms are getting worse
I thank the Lord, that I don't need a nurse

Depression is a common thing, especially during the holidays
Go out in the sunshine, it will help in so many ways.
Listen to up-lifting music, and put a smile on your face
Be proud of what you are doing and do it at your pace 

We all have times, when it is difficult to cope
Always remember your best friend is HOPE.
Thank the Lord for each day
Especially on his Birthday!


Tuesday, April 11, 2017

Parkinson's disease Day - April 11



This day is special for a me and you
And the thousands more that have it too
It is the biggest battle to fight for sure
Hopefully they will find a cure

Most of the day, I feel so much pain
I won't give in or just sit and complain
I prefer to look at the wonderful gift of life
Reach way deep - all the way -deep inside

Keep in mind, you are never alone
There is the internet and always the phone
At times it can be difficult to cope
Never give in, there is always hope

Yes, there are times we suffer
But that's what makes us so much tougher.
One step at a time, finding your internal strength
We are pushing those stiffened arms at length

We move our limbs and stretch them out
We begin to stand and move about.
We raise our voice and sing out loud
We did it, we feel good and oh so proud!

Everyday, we must conquer and defeat
Not giving into PD  feels so sweet!



Thursday, December 8, 2016

The Holiday Season




There are many days that we can barely move

But we must force ourselves to improve
With great effort we must try


Even with flowing tears from our eyes

It's perfectly fine to have some frustration
Our passion for living is full of determination


Although life has many ups and downs

Let's all work to turn this all around
We can begin to look at the bright side
Feeling good about our achievements with pride


Begin each day feeling delighted

Share each moment feeling excited
Reminisce of Christmas past
Drinking cocoa and having a blast!


Decorating the Christmas tree

Is full of joy, can't you see


Listening to Christmas Carols is wonderful

The sweet sound, is helping us feel so delightful
There is such warmth and magic in the air
By sharing with others and saying a prayer!




Merry Christmas!




Tuesday, November 29, 2016

Why Oh Why?

Coffee


Nicotine
Marijuana 
Red Wine








I have read so many reports that say the following may help with Parkinson's:

                            coffee, wine, nicotine and marijuana. 



Nicotine is good for Parkinson's but it causes cancer and addiction

Marijuana is good for all medical illness but can do harm to some and it is still against the law in a few states, and who knows if the insurance companies will pay.

Red wine is good for you, if you drink it in moderation. The same is said for coffee.

We should all  get plenty of sleep and sleep on our side. Sounds good but many of us are lucky to get 4 hours of sleep a night and by 3:00 or 4:00 in the morning, all we care about at that time - is please let my body and mind go to sleep.


I continue to exercise, maintain good weight and eat plenty of fiber. I do my best to be happy and not be depressed.

I guess I should drink a cup or two of coffee each day, and drink a glass of red wine at night.

Why can't they put nicotine and marijuana in the form of a pill for us to take. Instead they spend so much money on research and where does that leave us.

Why - Oh why- is that too much to ask for? And while you are making that pill, please put in a nice non-habit sleeping aid. 

If you make that pill, I will drink coffee and drink a glass of red wine each day.

Thank you.





Saturday, October 29, 2016

Grape Vine



This morning upon waking up, I could barely move
My body was stiff and sore, but I had to prove
That no matter what, those limbs of mine
Have to move so I can get into the groove
With the music, by doing the grapevine

I love to dance, so lets try and take a chance
We can feel the grove, as we see them dance
All you have to do is feel the beat
Then you will begin to move your feet

Even if you hold onto a chair and take small steps
It's loads of fun, and when you are finish you can rest
Just by trying, you will feel so much better
It is a lot better than sitting and watching the weather. 

So join me and lets have fun!