About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

Translate

Tuesday, November 29, 2016

Why Oh Why?

Coffee
Nicotine
Marijuana 
Red Wine






I have read so many reports that say the following may help with Parkinson's:

                            coffee, wine, nicotine and marijuana. 

Nicotine is good for Parkinson's but it causes cancer and addiction

Marijuana is good for all medical illness but can do harm to some and it is still against the law in a few states, and who knows if the insurance companies will pay.

Red wine is good for you, if you drink it in moderation. The same is said for coffee.

We should all  get plenty of sleep and sleep on our side. Sounds good but many of us are lucky to get 4 hours of sleep a night and by 3:00 or 4:00 in the morning, all we care about at that time - is please let my body and mind go to sleep.


I continue to exercise, maintain good weight and eat plenty of fiber. I do my best to be happy and not be depressed.

I guess I should drink a cup or two of coffee each day, and drink a glass of red wine at night.

Why can't they put nicotine and marijuana in the form of a pill for us to take. Instead they spend so much money on research and where does that leave us.

Why - Oh why- is that too much to ask for? And while you are making that pill, please put in a nice non-habit sleeping aid. 

 If you make that pill, I will drink coffee and drink a glass of red wine each day.

Thank you.


Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)