About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, June 14, 2014

I Am Not A Spring Chicken!

We had planned taking our grandchildren this week since the beginning of February.
Reservations were made at that time. Although I was not 100%, we decided not to cancelled a few days at Busch Gardens. I am glad that we went. The children were wonderful.
I glowed with pride on the mannerism and behavior.
 I am not a Spring Chicken, But I am finally getting well.

I used a power wheelchair the entire time and that really helped me. On Thursday while in Busch Gardens, a small gust of wind blew, and a large Umbrella and stand tumbled over. The opened umbrella hit my right arm.  I thought it was a small mark on my arm but  I also had two small punctures in my arm. I had an incident report made and an EMT gave me ice to place on my arm.

Things happen but that did not end our fun with the children. We had an enjoyable time.

I would like to thank all for their prayers, concerns, well wishes and friendship.

God has truly blessed us.


Again,
Thank you and God Bless,
Margie


Tuesday, June 10, 2014

The Beginning of Better Days


I woke up this morning feeling better.
 I put one foot in front of the other 
and each day gets better and better.



Life is beautiful, Life is good.
It is too good to miss
I open my eyes, and praise God, 
I am thankful for not being just a mist.
I am of human skin and bone
It's not my time to go home.

I continue to follow the doctor's advice
I am slowing doing light exercises
and prefer to use my own devices.

My periodontist removed a few sutures,
It is slowly healing and looking good.
I have to return in the near future,
The remaining sutures will be removed.
The implants are healing as they should.






Saturday, June 7, 2014

Tough Week For Me!

This has been a tough week for me. Monday was my oral surgery . It has been  6 days and still pain. Wednesday was Botox, this time I received 9 injections in my right leg and 7 in my left leg.
To top it off and normally I would not get this personable. It may sound gross, but it is a fact of life.
 I have had bleeding hemorrhoids.  The majority of people with bleeding hemorrhoids have a little blood when wiping. Due to the bacteria in me, the bleeding lasted close to a week out of each month. I was loosing about a 4 ounces of blood a day. I felt like I was  on my period.

Most people with Parkinson's disease deal with constipation. That was the opposite for me.
I have an unknown bacteria in my intestines that caused the diarrhea. This in turn caused the hemorrhoids. I had to wait until the diarrhea was under control  before this procedure could take place. So I had a procedure done Friday.

You are probably asking why in the world, would I have all of this done at once? I am on blood thinner and I have to be off  for the oral surgery and the for the band-aide  procedure. It is risky being off for fear of another stroke. In life we have to take chances at times and pray that all will turn out ok.

Normally, I can fight and overcome it sooner, but this time it has really knocked me for a loop. Each day, gets a little better and I am sure when the sutures are removed from my mouth on Tuesday, I will slowly be able to eat solid food and I will regain my strength.

Depression at times filters in, but I try my best to fight it. Music seems to help lift my spirits

I look at things differently.  I still am alive., I am not dying, I can manage with my pain.

I have a wonderful family, wonderful and caring neighbors! 

I am totally Blessed. Life is worth Living. Life is a challenge as well as a Blessing.


I  am looking forward to singing, dancing and riding my tricycle.







Thursday, June 5, 2014

Feeling Blah!


I just can't sit around. 
I want to walk
But as soon as I do
I feel the need to lie down.
My body is not healing as fast as it did.
Is it Parkinson's or because of my age?

How do I fight this? What can I do?
I can't make myself younger,
I can't take away Parkinson's.

I can't believe this surgery put me down.
All I can do is gradually build my strength up
I can only eat soft foods.
That makes me frown.

First I used cold compresses,
 now hot compresses is needed,
I feel like I need to confess,
First cold now hot
Is this just to keep me busy or what?

 I must think positive and not let the blahs in.
I turn on the music to an upbeat song.
This helps me to feel good again.
Patience is needed for me to be strong.

I look in my mirror to give myself a talk
It may sound silly and come as a shock
Sometimes I make faces and laugh at myself.

If we all were as active as a child,
I wonder if we could stay healthier.
If so, that would be my style.










Wednesday, June 4, 2014

Watermelons?






I am on my lanai this morning thinking about of all things, watermelons. I am probably thinking about food , since all I can eat is soft food, while I recuperate from this oral surgery. I have quite a bit of sutures in my mouth.  My lower jaw is all swollen, looking like I had been in a boxing match. It is weird, yesterday morning I had very little swelling, but that changed as the evening wore on. To take my mind off of the discomfort I sit back and relax.







My mind begins to wonder.  I am thinking about my childhood days. So sit awhile and let me tell you:


I remember as a child about 9 years old. A few of my girlfriends and I were walking home.  We saw this vacant lot with weeds growing about 2 feet high.  We were walking across it and spotted full grown watermelons. This is July - WOW- we struck it rich! We each grabbed a watermelon and continued walking home. The melons were quite big and we sat down a couple of times to rest, making sure that we didn't drop our watermelons.
Finally, we made it to my house. Other kids were asking, how we each came across the watermelons. We told them. About 4 other kids went to get them too.  Everyone ended up at my house. When my parents came home from work, we showed them what we found growing wild. Mom had purchased a bushel of corn so we all had corn on the cob and watermelon. How wonderful we all felt until the next day, when we found out the melons were not growing wild, but someone had planted the seeds .
Word spread about the watermelons  and a man came to our home. I explained to him that I was the one that suggested we each take one home, that it appeared as if they were growing wild. I apologized stating that I was sorry. He stated that he was grateful that I was honest with him. He said that he had planted the seeds, but never expected them to grow in that soil. He was wrong in not taking care of the land and that he was glad that we were able to enjoy them or they would have rotted. 
Mom asked me what I had learned from this. I stated that if something is growing that I should not pick it or take it,  unless I planted it myself.  We had to go to the field that weekend and  help clean up that lot. Although I was taught a lesson, I can honestly say, they were the Best watermelons that we ate that year.







 Have a joyful day!



  





Tuesday, June 3, 2014

My Surgery Went Well.

My surgery went well. I am a little swollen. The doctor did not use all of my roof of my mouth so I do not have a plate to cover it. I thank God for that. I am in pain, but I have medicine for that. All is good. Thank you for all of the well wishes. May God be with you and keep you well too.



Sunday, June 1, 2014

The Day before My Oral Surgery

I had the stomach bug last week and now I feel better. I am trying to think of what I will do.




I would love to play tennis:
I would probably just be a menace.
Or end up in an ambulance.


I would love to play cards, But my mind is too slow
My memory of numbers just don't flow
I am sure some would  
like to send me on my way.
Where others would want me to watch and stay.



I guess I should take it easy today
Since tomorrow is my surgery
It will take 2 1/2 hours or 3
 until I am placed in recovery.
I pray that all goes well
home I'll go if all is swell

The Doctor will take the roof of my mouth
and make gums for my bottom mouth.
If bones are needed they will be placed 
into the jaw so it's not too late.


I could start a team from the cadaver bones in my mouth
 I have so many, I can't even count
I am thankful  for those angels above
Because all of the bones fit like a glove.

The roof of my mouth will be not be there
 A plastic plate will be made  for me to wear 
My roof will grow but it will be slow

 I will probably be swollen and black and blue
This has happened in the past to me
I am sure this will hold true.

I am a little nervous.



So if you read this, I ask that you say a little prayer for me  
Thank you