About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, June 7, 2014

Tough Week For Me!

This has been a tough week for me. Monday was my oral surgery . It has been  6 days and still pain. Wednesday was Botox, this time I received 9 injections in my right leg and 7 in my left leg.
To top it off and normally I would not get this personable. It may sound gross, but it is a fact of life.
 I have had bleeding hemorrhoids.  The majority of people with bleeding hemorrhoids have a little blood when wiping. Due to the bacteria in me, the bleeding lasted close to a week out of each month. I was loosing about a 4 ounces of blood a day. I felt like I was  on my period.

 Most people with Parkinson's disease deal with constipation. That was the opposite for me.
I have an unknown bacteria in my intestines that caused the diarrhea. This in turn caused the hemorrhoids. I had to wait until the diarrhea was under control  before this procedure could take place. So I had a procedure done Friday.

 You are probably asking why in the world, would I have all of this done at once? I am on blood thinner and I have to be off  for the oral surgery and the for the band-aide  procedure. It is risky being off for fear of another stroke. In life we have to take chances at times and pray that all will turn out ok.

 Normally, I can fight and overcome it sooner, but this time it has really knocked me for a loop. Each day, gets a little better and I am sure when the sutures are removed from my mouth on Tuesday, I will slowly be able to eat solid food and I will regain my strength.

Depression at times filters in, but I try my best to fight it. Music seems to help lift my spirits

 I look at things differently.  I still am alive., I am not dying, I can manage with my pain.

 I have a wonderful family, wonderful and caring neighbors! 

 I am totally Blessed. Life is worth Living. Life is a challenge as well as a Blessing.


 I  am looking forward to singing, dancing and riding my tricycle.

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