About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Thursday, October 8, 2015

Being with family and friends




How great it is to go back to my hometown and see people I haven't seen in years
It brings back such wonderful and caring memories that brought me to tears
I am so thankful that I was able to be with so many friends I grew up with
We talked about our times together and those ghosts that were myths

 Such happy childhood memories and  innocent time we had back then
It was time to say our goodbyes until we see one another again.
Of course we hugged one another and held back our tears
I sat back and thought about all of those years.

 We were able to spend time with our family, it had been years
My sister, Linda did everything for me and I  saw her fear
I had to be strong when my tremors began,
I had to tell her please don't try to lend a hand
I saw her hurt and I tried to make her understand

 Please dear Linda I appreciate everything you do
but to fight PD, I make my body do what it has to.
I love you dearly, but I have to move my body,
or I'll end up bedridden and feeling shoddy.
My brother Bill, is always joking and laughing
He tell stories and lets me know what's happening
They both show their love in different ways.
I love them so, even if we disagree, it's ok.
My husband's family is in my heart too.
We have had our differences, more than a few
But I do what I can to not be blue
Life is to short to let things stew
I hope they know, I love them too.

 Being with our son and family is heavenly
I have so much love for them so tenderly.
We live so far apart
But they are always in my heart.

 Family and Friends are so very important to me
This is why I say thank you God for thee.





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