About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Friday, May 2, 2014

Possible needed items

There are people with PD that may be unable to get up and move, that in itself is a challenge. I have been there and I truly understand. If you are unable to stand can you move your arms, hands, feet? If you can then try to move them for a few minutes every day.

If you have a caregiver and you have needs, such as  bedsores, diapers, rash and etc. See if your doctor will write you a prescription for needed items. Such as a power wheel chair, a chair that lifts  any other moveable device. Take the prescription to a power wheel chair store.  The store can and want to contact your insurance company to find out how much they have allocated for you to spend.

The caregiver may need special things for you, such as utensils to eat with, help with bathing and etc. I found this web site to be useful. I have not used them. I am unable to tell you about their reputation. I am not advertising for them.  There may be other places selling the same items,
but this is a start.
Good Grips Weighted Utensils


Caregiver supplies, products, equipment and devices that help make in home care a little easier for people with Parkinson's.

PRODUCT CATEGORIES
Bedroom EquipmentBedroom Equipment
Provide independence, safety and comfort
Bathing & GroomingBathing & Grooming
Adapted hygiene aids for independence with personal hygiene
Toileting AidsToileting Aids
Help maintain independence with toileting
Dressing AidsDressing Aids
Provide independence with dressing
Dining AidsDining Aids
Weighted utensils, non-slip plates, large handle cups helpful for shaky hands
Mobility AidsMobility Aids
Keep moving with adapted walking and transfer aids
Medication RemindersMedication Reminders
Ensure taking the correct medicine at the correct time
Writing AidsWriting Aids
Large grip pens & weighted handles help shaky hands
Caregivers must take into consideration a gradual decline in health and abilities of people with Parkinson’s. Many products are available that can be used to adapt the home environment to help make the daily living process easier.

Adapting the home environment can help deal with some of the challenges that people with Parkinson's disease face, but also to help make every day routines easier – such as eating, bathing, and dressing aids that help to make life easier for the person with Parkinson’s and the caregiver.

I am certain there are other sites offering so please feel free to check.This site was referred to me a few years ago.

The Wright  Stuff
https://www.caregiverproducts.com/parkinsons-eating-feedingaids.html

I have no feed back on this company, I have never used them, but wanted to pass it on to you.

If you have other sites that will aid  people with Parkinson's , please let me know.

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