PARKINSON'S AND OUR CAREGIVER

It has been a long Journey as to where I am today
I will always live with HOPE
Someday, there will be a better way
to treat, or a cure for this is how I cope.

I ask for PATIENCE, since I am slow
at speaking, thinking and doing.
in different situations.
Some people become impatient.

RESPECT is valuable to me
I respect others you see
This how life should be.

We have a common ground
called PARKINSON'S DISEASE
Differences have been found.
Some have tremors of the hands,
while others shuffle as they walk.
Some fight with depression while
others can hardly talk.
Some have a blank face, 
as if they are in deep space.

It is a DIFFICULT TASK to absorb
This is someone who can't be ignored
We have feelings too.
Illness can happen to you.

We never know what the future may hold
Our biggest fear, I'll try to unfold
REJECTION can put us in an depression state
Just because you become irate.
Please don't throw a fit
We with Parkinson's did not ask for it

So before you speak, remember one thing
Understanding and a hug is what we need.
Being our CAREGIVER is hard for you
Take a break, recover a while
Please come back with your loving smile.

Caring about others

Caring about others is what the world should be.

Working together, helping one another to see

There is so many that are in need.

Let's begin by helping  all our neighbors in our community.

We will be able to meet our neighbors, what an opportunity.

It is valuable and yet free by doing favors

The elderly lady does not drive 

and needs a ride to the store, 

she in turn will sew your dress that you tore.

We ask that they in turn, pass this on to their neighbors

This could continue to grow, if all would do it

It up to you, can't you see

to make life better for you and me.

Although this day has been special

Although this day has been special you see, 
I fight this thing called Parkinson's Disease.
In the past, I fell to anxiety and depression. 
But nearly twenty years of therapy,
Making sure I do not slide into regression 

Overcome the feelings in the very beginning, 
by doing everything except quitting.
Try turning a funny movie on, listen to upbeat song
step out in the sunlight, and pat yourself on the back
for doing everything right and doing nothing wrong.

Take small steps towards your goal
In the end this will be a life saving roll.
There will be times, when nothing works
I'm sure it's a time when you just hurt

There have been moments 
when I've wanted to give up hope.
But I decided to ask for help 
and needed encouragement to cope.

I fight these feelings daily too
I am telling you this 
because I care about you.

Merry Christmas to you and your family!

Christmas can be a time of joy

A time of feeling blessed

but it can be a time of being stressed

feeling overwhelmed and unable to do

This can bring on the Parkinson's blues.

Stop and take a deep breath, 

Remember this is your day too.

If you can't bake, or do what you use to do

That's ok, let others do for you.

For those that are alone,

call someone on the phone

They would love to hear from you

The both of you will feel better too.

Sometimes in life, we struggle and suffer, 

Those experiences, help make us tougher. 

Life is such a beautiful thing.

It is a precious gift we were given.

We never know what each day will bring.

So lets all start liven.

Wherever we go, one thing we should take, 

A smile of joy, each day that we're awake.

Thank you Lord for giving us this day,

There is a special thing we'd like to say,

"Happy Birthday Dear Jesus."

Many of us with Parkinson's disease

Many of us with Parkinson's disease

Have learned to be at peace.

Not knowing what the future will hold

We learned to fight and be bold

Exercise our body and mind is the important key

To slowing down Parkinson's disease.

Most importantly, I have found, 

Is to be happy from within and carry a smile

You will feel better by doing so

It is so much better than wearing a frown.

By moving yourself with exercise this is a big plus too.

You will feel more secure with everything you do.

Take a few moments to pray or meditate each day

I am so thankful to God, for letting me stay.

Each day I enjoy watching birds sing
and the ducks floating in the pond.
Seeing nature at its best is a wonderful thing.

Years pass by and we continue to age
Before we know it  we are near our final stage
Each moment I take a breath, life is what I cherish
None of us truly knows when we will parish.

So live life each day as if it were your last
Join with me, and let's have a blast.

We live in a Beautiful World

We live in a beautiful world and have been totally blessed.
Overcoming Parkinson's disease is our quest
By following our passions, we will be fine
Having a positive attitude, we will shine.

Many thoughts of wanting to light the fuse
to rid ourselves of the Parkinson's blues
Sounds great but impracticable.
Let's try to make it manageable
By taking a walk and moving about
We begin to explore just like a scout.

We've had many falls and lots of tough breaks, 
We took our chances but knew what was at stake.
We sweated, we ached, and we worked all the while, 
And we hid all the pain with a convincing smile.
We plan to to continue each day, for sure
Until they say Parkinson's is no more.

Day of Event - Unity Walk - Annual Fundraising Walk In Central Park NYC To Raise Money For Research Into Parkinson's Disease

Day of Event - Unity Walk - Annual Fundraising Walk In Central Park NYC To Raise Money For Research Into Parkinson's Disease

Help me raise funds and awareness for Parkinson's disease research!

I have signed up to walk and fundraise for the 2015 Parkinson’s Unity Walk which will be held in New York's Central Park. The pictures are My husband Larry & myself as well as my Service Dog, Spencer. Why I'm walking: Every walker and donor makes a difference by taking the Walk one step closer to finding the cause and cure for Parkinson’s. By joining together with thousands of others, we'll be empowering those who are living with the disease, and honoring those who lived with Parkinson’s. Who I’m walking for: Over 1 million people in the United States have Parkinson’s. 60,000 people are newly diagnosed every year – one person, every nine minutes. Walking and raising funds and awareness for research is my chance to help. Why I'm supporting the Parkinson’s Unity Walk: 100% of donations go to research. The Parkinson’s Unity Walk is the largest grassroots event in the U.S., raising funds and awareness for research. Ways to support my fundraising efforts: There's strength in numbers so please join me. Donate, register to walk, and fundraise. Originally from Hagerstown, Maryland. We now live in Pelican Preserve in Fort Myers, Florida. My husband is a retired Marine. Asking for everyone to please contribute even if it is $5.00. By donating, which is tax deductible will help the researchers to find a better way to treat or find a cure for Parkinson's Disease. Would love to have you join me to fight this terrible disease. Thank you and God Bless, Margie Swope

To Donate- Please go to:

http://unitywalk.kintera.org/faf/r.asp?t=4&i=1113790&u=1113790-335022042

An Accident

 An accident

An accident can throw you into a whirlwind of emotions.

You feel like your going to have an explosion. 

I went to a Christmas Ball

Luckily I didn't fall.

But a man step on my ankle 

and after plenty of ice

I decided to dance
I wanted to take a chance

But after arriving home.

My foot began to swell

I spent the night in living hell.

When morning finally arrived

I went to an Urgent care

I was determined to survive.

After x-rays, I was told a fracture ankle.

I guess I should be thankful.
They put on a brace around my heel
I said to myself, let's get real
I am unable to put my foot down
I began to frown
The Doc said that is the purpose
He said it with sternness
Not to move your ankle.
It must stay in place.

So much baking to do, parties to attend, 

and singing with our group.

I just can't pretend.

What do I do? How can I recoup?
I decided to take a deep breath
Be calm, and for a moment, just rest
I don't want to get all depressed

I decided to take a stand
and just do what I can.


Note: The person that stepped on my ankle apologized
and felt so bad. It was an accident. I don't blame him.

Hooray, I made it another day!

Hooray, I made it another day!

The cold weather is upon us

it is a new adventure and a plus

As I begin my morning walk,

My neighbor stopped and talked.

I saw a heron by the pond,

looking for fish to feed upon.

I saw a squirrel climbing a tree

But as soon as he saw me 

he continued to flee

The sun felt warm as I moved at a slow pace

I am happy I don't have to race

As I began to head back home

I suddenly felt so alone

Why do I feel this way, I wondered

All of a sudden I began to shudder

I understood what was going on

I walked too far, this Saturday morn

My medicine is past due

I say to myself, "Shame on you"'

This is why I began to feel so blue.

I called my hubby explaining my predicament

He is so caring and so magnificent.

How fortunate I am 

having such a wonderful man.

He is my partner through thick and thin

I think I'll keep him and not trade him in.

Note: Larry & Margie have been married for 48 plus years.

Christmas Light Show

A Christmas Light Show to raise awareness of Parkinson's. http://www.kare11.com/…/land-of-10000-…/2014/12/11/20284475/

Parkinson's diagnosis inspires Christmas light show

Mike Justak has build a 58,000 light synchronized show how to help others, who like him, who have Parkinson's disease.

KARE11.COM

I am not invisible

Having Parkinson's disease can be lonely

Some people may think I am a phony.

I walk right in and sit a while.

All of a sudden help is needed

I realized my body felt defeated

I tried but couldn't get up, 

I was totally stuck 

Some people can be cynical.

Gossiping as if I am invisible.

I don't fake it, can't you see

No one wants Parkinson's disease.

There are people with PD,

that can't walk you see,

but when they hear that musical beat

they can dance.

They take that chance including me, wanting to be free

of this disease.

Please don't act like you are the judge of others or me.

Apparently you don't understand Parkinson's disease

The inner workings of the brain is as mysterious as can be.

Science with research are breaking that barrier to help you and me.