About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Friday, August 26, 2016

Our Family Memories




Precious times watching our son and daughter grow
They both make us so proud, we could just glow

Memories of our first grandchild, Kristina, was such a gift
But living a thousand miles away, those precious times we missed
Then came our step granddaughter, Angela another gift
Times moved forward, looking back only wish we never missed
Watching them grow into beautiful caring ladies
We are proud grandparents more now than when they were babies

Our daughter lives forty miles from us
Watching the birth of our granddaughter Madison was a plus
Then came along our grandson Grant, just 18 months apart
They are just so lovable and a pair of sweethearts.
Yes we are proud grandparents and have so much love for all
Our family makes us so proud, if we could grow, we would be 10 feet tall.

We have been blessed with so many good friends over the years
Moving throughout the United States and Japan, leaving with tears
My husband was a Marine, so we moved quite often 
After settling down in Florida, I guess our next move will be a coffin.

But we continue to make memories, as our lives go onward
Enjoying fun times with our friends, as time moves forward
Parkinson's slows me down, but I do the best I can
Enjoying our lives with one another, that is our plan.

We think positive with life's ups and downs
Feeling so blessed that we are still around.

Monday, August 15, 2016

A Poem written by My Dear Friend, Jim Evridge

I lost a Dear Friend on July 19, 2016, Jim Evridge Jr., because of  stage 4 Emphysema "AKA:SILVERFOXX-FIGHTING BACK".




Jim had Parkinson's disease and helped many of us suffering with Parkinson's disease through the years. We sometimes laughed, shared memories, knowledge and most of all friendship. My husband Larry and I were able to visit Jim and Kathy a few years ago, when they came to Florida, Wow- what a treat! Such a wonderful caring couple.  Jim gave me permission to use his poem. It has always been on this site, since I began this blog.

 I want to share the poem he wrote:


We have PD .. 

We are a kindred spirit
We cope as best as we can against terrible odds.
We sometimes succeed sometimes we fail sadly,
But we never give up, or give into it.
We rely on each other
We lean on each other
We cry with each other 
We dry each other’s tears.
We love one another like. no other love felt
We lift each other up
We compliment each other.
We share our joys.
We share our misgivings.
We learn from each other.
We care for each other.
We understand.
We try our best to defy the odds,
Against this evil monster … PD.
We fight with everything we have.
We shall never give up our cause.
We shall never give into it.
We have PD


Together you and I, whoever and wherever you are equals “WE”.

Written by Jim Evridge.

No more suffering, dear Jim. You were a true fighter!



"Sometimes our light goes out but is blown into a flame by another human being. Each of us owes our deepest thanks to those who have rekindled that light."   Albert Schweitzer 
"Always remember to be thankful for what you have. There are those less fortunate than you and I who have hope in their hearts and prayers of thanks on their lips."   Jim Evridge AKA:Silverfoxx_Fighting_Back    

Sunday, August 7, 2016

Our struggles






Many times we have to struggle
When we have troubles
But we continue to fight
At anytime, day or night

Our life depends on not giving in
Even when we feel like we are out on a limb
Pushing and moving when we can barely move
We do this each day, to make sure we improve
Parkinson’s won’t win as long as we are together
We will begin to feel as light as a feather.

No more feeling as if we were carrying weights
Gliding smoothly as if we had on skates
These wonderful memories gives us hope
Helping us to be able to cope

Having family and friends so dear
Helping us fight without any fears

Being together we will continue to endure.
Until the day comes when there is a cure!






Saturday, July 23, 2016

Sound of Music









When I hear the sound of music it makes me smile
I enjoy dancing, even if it's just for a little while
Listening to the melodies, that I truly adore
I can feel the beat as my feet wants to soar
So off we go dancing on the dance floor

I may walk with a cane and shuffle my feet

But I can get up dancing and it feels so sweet
Up on the dance floor, I feel healthy and free
Then all of a sudden down I go, falling on my knees.

I get right back up, knowing it is time to sit and rest

Off the dance floor I go, knowing I am so blessed!
No broken bones, a little bruised and just out of breath
These are special times for me, I must confess.

I like hip hop, line dancing, doing the slide, slow dancing and more

I enjoy all of it, even if I mess up, I laugh doing what I adore.
Sharing the music with my husband is always a pleasure
Certain songs brings back many memories that I treasure.

Have you ever listen to a song and felt that beat
Your body may tingle right down to your feet.
Music has a way to enlighten us during the day
It brings us happiness and joy in so many ways

Wednesday, July 20, 2016

Parkinson's around the World




So many of us around the World have Parkinson's disease
Each day, the numbers  continue to grow, it is hard to believe
There are so many questions, without answers for sure
Will we ever know, or just continue to hope for more  

Our scientists, doctors and researchers are finding out more

The brain is a big puzzle and challenge as they explore.
As time has past, they are getting a better understanding
The World Parkinson's Coalition is outstanding

Renowned health professionals, researchers, and advocates globally will be there

Discussing cutting edge science, clinical research and comprehensive care
Knowing that exercising, meditating and positive thinking is the trend
Many Professionals agree it is another tool that they recommend.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Some helpful information if you are interested:



Join us in Portland, Oregon for the 4th World Parkinson Congress 
More than 3,500 people from 65 countries will attend the WPC 2016 in Portland, OR 

9/20/2016 to 9/23/2016
When:9/20/2016
Where:Oregon Convention Center
777 NE Martin Luther King Jr Blvd
Portland 97232
United States
Presenter:World Parkinson Coalition

Go to their Website to for more information:

http://www.wpc2016.org/?page=Promotion

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Sunday, July 17, 2016

Exercise with HOPE






Parkinson's disease can be difficult to cope
The strongest therapy above all, is hope
We have the strength and willpower to defeat
We exercise from our head right down to our feet

By exercising and meditating, makes us feel unstoppable
During those times we feel as if anything is possible

Positive thinking is the next thing to do
Change the negatives to positives, is my gift to you
This will help you feel better and not be feeling blue

You may want to use the computer to play some games
What a wonderful way to exercises your brain
You can also listen to music and dance
It is better than sitting like your in a trance

Try to relax your body and mind
Giving yourself some quiet time.

You completed this task, I call it a wonder-drug.
Now it's time to smile and give yourself a hug.

Tuesday, July 12, 2016

Olympics and Memories



Our wonderful Olympics and the memories it brings
When I was in school, gymnastic was my thing
I loved the vault, back then, we called it the horse 
Never letting my mind wonder and staying on course
I would run up and spring doing a simple flip
Coming down and landed making it stick
Our gym teacher was very, very strict.

She would say, get out there and do better than your best
Maybe, just maybe, I strive today to fight PD and feel blessed
I hope that after all these years, I still pass the test.
I do all that I can and more to overcome this disease
Meditation helps to relax my body and mind, to feel at ease 

I have my pity moments, don't get me wrong
But then I say to myself, get over it and stay strong.
There are others, that have it worse than me
If there is a spark left in me, I will not flee

Throughout my life, I have had many challenges to face
As time has past, I move slowly, but at my own pace
I am thankful for my family, friends and the Lord
It is the greatest of any rewards!