About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, March 30, 2015

Sunday, March 29, 2015

I know I can do this








I may be slow but I know I can do this
I will slow down this thing inside of me
If wishes could come true I'd send it to the black abyss
In reality, I know it is up to me, and I will not flee.

I take my medications on time
Then begin to meditate and exercise 
which helps me feel more energized
I will play word games to help my mind. 

To overcome those Parkinson's blues,
Go out in the sunlight, it helps me and it may help you.
Always remember you are not alone
I can always be reached on the phone.


Saturday, March 28, 2015

Believing in Yourself.




Life has many ups and downs
I for one try not to frown
Often my Parkinson's is a struggle
I work hard to rid myself of this trouble.

At times I drool as well as shuffle my feet
I exercise and meditate to feel complete.
I will not quit believing in me.
Life is to important and I will succeed,
By slowing down Parkinson's disease.
I like to dance and be happy too.
I have no time for the Parkinson's blues.

From my life, I'll never hide,
Loving the journey, with every stride.
Wherever I go, one thing I'll take,
Smile of joy, each day that I wake.

Living my life to the fullest is what I do
It's important to me, 

and I'm sure it's important to you.

Thursday, March 26, 2015

I will not give in


Each breath I take, I know I will not give in to Parkinson's Disease.
God has given me another day and I will do all that is possible
to slow down this thing inside of me.

Many days are good and I do my exercises,
like Tai-Chi to regain my balance
This helps me feel completely energized
With pride I feel totally valid

In the afternoon, I am on my lanai or in my pool
It helps to remove the Parkinson's blues.
It's better than being at work or at school.
I enjoy watching the golfers on the green
and the birds building a nest in a tree.
Hearing the sounds of the birds tweet
It sounds so sweet.

I take a few minutes to pray.
Thanking God for this day.


Wednesday, March 25, 2015

I fell in the shower





I woke up this morning with quite a bit of pain
I took another hard fall in the shower
I have no reason to complain
The shower has a bar as well as a seat
I guess I felt I didn't need it, so I cheated

I am thankful I didn't break any bones
The doctor told me in his strong tone
"Use my power chair in the evenings"
I am thankful, I wasn't bleeding
I will not take anything for granted
This is the life I have been handed.
I will take precautions to be safe

I will do all that is possible
and not let any obstacle
stop me from slowing PD down.


Monday, March 23, 2015

I do Believe !



I believe in God to get me through the day
I wake up each morning, thanking God as I pray.
How wonderful to witness the morning
Hearing the birds sing is so charming
Seeing the trees bloom and the flowers budding
I can hear the bees humming.

The beauty of Spring is a wonderful thing
It gives me so much more zing.
I feel more alive you see.
I can't answer as to why it does that to me.

I believe in meditation and exercise 
Which helps to make me more energized
In slowing down Parkinson's disease.

Friday, March 20, 2015

PLEDGE TO DO ALL THAT I CAN!

MEDICAL ALERT
I have  PARKINSON'S DISEASE
which can make me move slowly and
have difficulty standing or speaking
I AM NOT INTOXICATED
Please call my family or physician for help.



I pledge to do everything that I can to slow Parkinson's disease.
When I had my stroke, I had to move it or loose it.
I worked through the pain, to get back to being me.
I will do the same with PD, I will not quit.

I am one of the lucky ones.
I am still able to move, but I can't run
There are times I fall down hard
They thought I was drunk, 
I could have been barred.
But I showed them my card.

I try to embrace all of the challenges I face. 
I will do whatever I can
as long as it's not a race.
God is my number one fan!
With God by my side
I turn to him as my guide.