About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, December 10, 2014

Living Life to the Fullest With Parkinson's Disease.




When I was told, there is something wrong,
I knew at that moment, I had to be strong.
When the doctor said you have Parkinson's disease.
I thought for a moment, and felt strangely at ease.

Finally, a name that's not just your nerves.
But what is this thing that is inside of me?
Then I felt scared and a little reserved.
My eyes filled up, I wanted to flee.

As time past, I researched all I could
This is a progressive disease with no cure in sight.
I now understand and will continue to fight.

I exercise each morning, as I know I should.
I began cycling to build my strength.
Knowing I will have to go to great lengths,
To fight and delay Parkinson's disease. 

We all have times when we get the blues,
As soon as that happens, it's time to defuse.
I call a friend, and talk for some time,
this help's me to feel just fine.

My writings are a gift I recently received.
I want to share my blog, 
" Living Life to the Fullest With Parkinson's Disease. "


Tuesday, December 9, 2014

COURAGE IS WHAT WE NEED



Courage is what we need
To live with parkinson's disease
We want to overcome this hold on us
and by being bold is a big plus.

We do the best as we can,
as long as we understand
PD will be with us indefinitely
It must be stopped eventually.

Too many of us have suffered
Even when we are tougher

When you feel sad and have the blues
Here's some things that you can do
The sun will help, by shining on you
Take a walk and stop and talk
to those who are walking too
Listen to the radio or sing a song
Whatever you choose you can't go wrong
and you will feel better too

We do tai-chi, ride a bike, or even take a boxing class
These are things we never thought would last
Being together to fight PD has been a blast
Put a smile on your face
We are slowly winning this race.

Life is something, that we cherish
We never know when we will parish. 
Let's enjoy it while we can
Let's be our own biggest fan.
   

Sunday, December 7, 2014

Good days gives you happiness



Good days gives you happiness
Bad days give you experience
Both are essential to life
But when Parkinson's shows it's plight
Then we together must fight.
When other things begin to arise
Those issues are hard to hide

When the internist says,
We have to find the cause of your osteoporosis,
it's  so severe that you should be in a wheel chair.
It's worse in your neck, spine and hips.
More tests are needed, possibly an oncologist
to assist.

More teeth are failing, my bones are deteriorating .
My brain is filled with hardening of the arteries.
Add more to my Parkinson's, dystonia and my two strokes

I can honestly say, I feel like my body is disintegrating
I wish it were a dream or just some sort of joke.

With all this information that has been given to me
I turn to our Lord and say, Keep me strong to fight
whatever the near future will be. I will not give in. 
I have my family, my friends and most of all, my husband can't you see.  

Thank you God for being with me.








Let's eliminate the parkinson's blues









Let's eliminate the parkinson's blues
Step outside and feel the sun on you.
Enjoy the sight's and sounds of nature.
We won't let Parkinson's be a taker.

Upon coming inside, let's work together
to fight Parkinson's with light exercise .
Let's move our body as best as we can
We are our own number one fan
We will continue even if it's forever.
It will seem like a giant enterprise is
fighting Parkinson's by being clever.

Putting a smile on our face
Moving slowly with so much grace.
We are special can't you see
We are fighting Parkinson's disease.

Giving ourself a hug is alright to do
It helps me feel good, I hope you do too.



Friday, December 5, 2014

As Christmas gets closer



As Christmas is getting closer.
Some feel lonely and sad.
This isn't what you had planned.
When you were younger.
Then came the thunder
You have PD they said

I know it's hard watching other families celebrate,
but if you are bedridden or unable to do
Please believe God is watching over you.
If you listen hard enough, you may hear the birds 
sing, or hear raindrops falling from the sky.
Relax and close your eyes
Listen to Christmas Carols from the radio.
Feel the love from your family and friends.

For those that are able to move
But are suffering from the PD blues.
You may not be able to do much
but it means a whole bunch
to the ones that truly care.
So please join in and share
 this precious time.

These are precious memories in the making.
Ask for help with your baking.
 Share your recipes with them
These memories will continue on
long after you are gone.

Margie











Tuesday, December 2, 2014

Parkinson's is a Progressive Disease





Parkinson's is a progressive disease
Sometimes, we loose our balance, falling on our knees
Some of us shake just like an earthquake
Whenever we're fully awake
While others are slow at all we do.
Some of us freeze, but if you hum a song feeling the beat,
You may be able to move those feet.
We may have different degrees of PD
but we can all come together
and fight the hold it has on us.
There is no time to sit and fuss.
Look into the mirror and what do you see,
this beautiful person staring back at you
Smile and sing as if your free,
of this hold PD has over you.
Pass this on to others too.
Give yourself a hug and squeeze very tight
Let's  truly believe we all will be alright.