About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Tuesday, October 14, 2014

There is Something Wrong

Margie Swope





I knew at that moment, I had to be strong.
When the doctor said you have Parkinson's disease.
I thought for a moment, and felt strangely at ease.

Finally, a name that's not just your nerves.
But what is this thing that is inside of me?
Then I felt  scared and a little reserved.
My eyes filled up, I wanted to flee.

As time past, I researched all I could
This is a progressive disease with no cure in sight.
I now understand and will continue to fight.

I exercise each morning, as I know I should.
I began cycling to build my strength.
Knowing I will have to go to great lengths,
To fight and delay Parkinson's disease. 

We all have times when we get the blues,
As soon as that happens, it's time to defuse.
I call a friend, and talk for some time,
this help's me to feel just fine.

My writings are a gift I recently received.
I want to share my blog, 
" Living Life to the Fullest With Parkinson's Disease. "


God Bless You!




























































Sunday, October 12, 2014

Life is full of wondrous things



 Life is full of wondrous things,
Just open your eyes you will see.
The beauty that God has given to thee.
Open your mind and you will see
God didn't give us Parkinson's disease.

He gave us gifts to do was is necessary
To rid ourselves of this adversary.
God gave us the courage to 
overcome this journey.
We must use our abilities
To find all of the possibilities

It is our responsibility to join this fight
By exercising, our mind and body with all our might.
Live our lives without those Parkinson's blues,
All we need is a detonating fuse.
Smile and remember that God is on our side
He is watching with so much Pride.
















Life with Parkinson's Disease



Life with Parkinson's Disease 


Our muscle are rigid and are sore to boot.
We must get them working, if we give a hoot.
If your tired of not being able to do,
Begin by exercising, it is up to you.

There are years you have suffered,
But I know you are tougher.

Relax and let you mind flow, 
and begin to explore.
You may find a hidden talent 
that has always been yours.
You could be a photographer, an artist 
or anything you like.

It is your time to try something new
and overcome those Parkinson's blues.
Follow your passions and all will be fine
Having a good attitude, will make you shine.

































Saturday, October 11, 2014

Sharing My Day With You



I am sharing my day with you,
Getting out to fight those blues.
I do my daily exercise, 
with my dog by my side.

It is a perfect sunny day,
Feeling the warmth of the sun rays.
I walk with my cane on my right 
and my dog Spencer on my left.
There is a breeze but only slight.

I realize I must turn around,
  I've gone too far,
I don't want to fall to the ground.
By singing a rap song 
and walking with the beat. 
As I get closer to my home.
I am still on my feet.

I laugh at myself.
I must look a sight.
Half dancing and half walking.
Swaying to left & right









Thursday, October 9, 2014

I am moving at a snail's pace


I feel like I am moving at a snail's pace.
No plans to go anywhere, at least I don't have to race.
But I continue to do what is necessary.
Hoping that I won't need any physical therapy.


As the day continues, my mind and body moves so slow.

Never the less, I smile and release the negative inside
Letting the positive energy grow and it begins to flow.


I step outside, feeling the warmth from the sun.

My medicine is helping, if only I could run,
I would sign up to a Parkinson's marathon.
This would make me feel like a good samaritan.


I  may move slowly, but I will succeed.

Because in my heart I will always believe.
I have a passion for life,
I will never give in
Or listen to other's strife.
So join me and hear my call,
Why can't we laugh, at all of our flaws.







Wednesday, October 8, 2014

Busy Day





Each morning I awake
feeling like my body has put on it's brake.

Waiting until my medicine begins,
 making me feel human once again.

I do my exercises and then begin
riding my tricycle once again.
Calling for rain, I watch the clouds roll by.
Hoping that I will be able to keep dry.

How wonderful I feel, 
knowing my body has healed.
I ride with a big wide smile.
I was able to go almost five miles.

As I returned home, my body is tired
But I have to get ready
Practice begins in an hour 
Acapelican is the name for our choir.

I push myself each and every day,
 and thank God as I pray.






























Sunday, October 5, 2014

While There's Life, Don't Quit




Each day that I wake up, is a new beginning.
Fill your heart with love and laughter
I know a cure is being sought after
I ask God to comfort us
and teach us how to cope
While there's life, there is always hope.

I pray that we will be healed one day,
Hopefully this disease will go away.
I fight it now, with all of my might
As I step outside and oh what a sight.
I see a bald eagle flying to such heights.
The ducks are swimming along the pond 
and along comes a duckling, oh what a cutie
God has blessed us with such beauty.

A simple smile of warmth I bring
and all of a sudden I want to sing.
God is with us that's for sure
I won't ask for anything more.

May God Bless You!