The Day before My Oral Surgery

I had the stomach bug last week and now I feel better. I am trying to think of what I will do.

I would love to play tennis:

I would probably just be a menace.

Or end up in an ambulance.

I would love to play cards, But my mind is too slow

My memory of numbers just don't flow

I am sure some would  

like to send me on my way.

Where others would want me to watch and stay.

I guess I should take it easy today

Since tomorrow is my surgery

It will take 2 1/2 hours or 3

 until I am placed in recovery.

I pray that all goes well

home I'll go if all is swell

The Doctor will take the roof of my mouth

and make gums for my bottom mouth.

If bones are needed they will be placed 

into the jaw so it's not too late.

I could start a team from the cadaver bones in my mouth

 I have so many, I can't even count

I am thankful  for those angels above

Because all of the bones fit like a glove.

The roof of my mouth will be not be there

 A plastic plate will be made  for me to wear 

My roof will grow but it will be slow

 I will probably be swollen and black and blue

This has happened in the past to me

I am sure this will hold true.

I am a little nervous.

So if you read this, I ask that you say a little prayer for me  

Thank you

HOW I OVERCOME THE PARKINSON'S BLUES !

HOW I OVERCOME THE PARKINSON'S BLUES !

I do everything to make me the best that I can be. 

No one wants to be around a moaner groaner.

Going outside can be the key

It works for me.

I don' t want to be a loner.

When the weather is bad,

I turn on the music instead

to an uplifting beat. 

I dance or just put a bounce in my feet.

I did not choose this disease of mine.

I meditate and exercise

To overcome the pain I feel

It can be a struggle at times

I tell myself I will feel fine.

I look in the mirror and smile at me

Or act goofy making faces at myself

It is ok to act silly as a child

Anything to lift that over bearing cloud.

Do anything to remove those blues,  just like these people do........

Exercise is one of the best defenses against Parkinson's Disease ~ This is Especially True for Those in a Wheelchair

Some mornings I feel like this :

After my medicine kicks in:

At times, I want to act like a kid, 

but after trying this for a while

I realize this isn't my style .

I know it is hard to relate, 

It has nothing to do with age.

So let's not try to debate,

I am just out of shape.

Exercise is one of the best defenses 

against Parkinson's Disease!

For those of you in a wheelchair

This is for you.

Turn your music on and move that body.

You can stretch your arms, 

Clap your hands to the rhythm.

Shout out loud ~ Let's stretch those lungs.

You can do it. I know you can.

We are in this together so lets do it all over again.

You can stretch your arms, 

Clap your hands to the rhythm.

Shout out loud ~ Let's stretch those lungs.

Let's add one more thing!

If  you can move your feet, lets shake them.

You can do it. I know you can.

Let's  take a moment to catch your breath 

And we will start all over again.

By doing this for 20 minutes each day

You are on your way to feeling better each day.

You should check with your doctor first to see if it is ok.

Remembering my First Parkinson's Unity Walk in Central Park

I am sitting at my desk, remembering my first Parkinson's Unity Walk in Central Park in 2008. I met so many people with Parkinson's, their friends and family members, from all over the  world.

Meredith Vieira  from the Today Show.

We talked for a while about PD and her husband with MS.

Janet Reno

Janet Reno, Former U.S. Attorney General was there because of her having Parkinson's.

May May 's father: Muhammid Ali
May May Ali , reading another one of her beautiful poems she wrote for this event.

May May Ali

Crossing the Finish Line.

         This was a very special day. I was in the wheel chair quite a bit and the walk was almost 2 miles. I was pushed in the wheel chair until  a few feet from the Finish Line. I got up out of the chair and walked across the Finish Line. That was a real challenge for me.
This was the highlight of my Day!

I had raised over $2,000.00 that year in donations that went directly to the Unity Walk for Parkinson's Disease Research. 100% goes to the research because of all of the volunteers. Yes, I was very proud. 

I will always remember this!  Thousands of people attended.   I am one of the lucky ones!

My husband Larry & I

I May Need Your Help One Day!

Help - I have fallen!

There may be a time that you see me fall, 

 I usually get up without making a sound.

But if ever you see me on the ground,

Unable to even crawl.

Please help me, or make an emergency call. 

I don't want to be a statistic at all.

Swallowing and Choking!

Off and on with Parkinson's

I may have problems  

swallowing  and food may get stuck

I may not be able to talk.

I may be moving my head around feeling like a shmuck.

I can breathe a little and need your assistance, 

by using your hand tapping me hard on my back a few times.

Please believe me, there won't be any resistance.
But if my hands are around my throat,

If I begin turning blue, I am choking and need your help.

Please do the  Heimlich maneuver until the food pops.

I will begin to feel like my old self.

Poem by Maryum "May May" Ali Read at the 20th Parkinson's Unity Walk ( 2014)

I met "May May" at one of the Parkinson's Unity Walks. She is such a kind and wonderful person. God gave her the gift to write poetry and she does this every year at the annual Parkinson's Unity Walks in Central Park, New York City.  I wanted to share this with you. This poem is about her father, Muhammad ALI and Michael J. Fox. 

2014

THE JOURNEY By May May Ali Over 30 years ago, my father's voice was a little louder than a whisper, and we thought it resulted from boxing. I have ‎a friend who had aches in his back. He thought it came from playing hockey. Unbeknownst to both of these men, their journeys had already begun. As years pasted, they were diagnosed with the disease, Parkinson. Like forks in the road their journeys were filled with choices that must be taken. And the roads that were traveled greatly impacted the outcomes of their situations. There's a path of inactivity, isolation, submission, and defeat. Another path is paved with proactivity, defiance, and a refusal to be beat. Like all of you right here and now about to walk together in Unity. Or like someone with PD exercising regularly and engaging in their community. Yes the journey is not easy, but your outlook doesn't have to be doom and blue. You can choose to manage your journey or allow it to manage you. Your life with PD is still special, so partake in what grows your smile. Meanwhile as we support a cure for PD, may your journey be filled with determination, continued hope, and style.

Memorial Day!

At 12:01 Today, please stop what you are doing, for a moment of silence. This is to show respect for the ones who have died and to pray for those who have served or continue to serve in our military.

Also please say a prayer for the families as well.

I would like to say, being a wife of a retired Marine Mustang,

God Bless and Semper Fi.