I Made it out of Bed today!

Some days it is a struggle just to get out of bed
But if I just lay, I might  as well be dead
I thank God for this inner voice that's in my head

Each morning, I thank Our Lord for giving me another day
I try to find joy in everything that comes my way
Just by moving this crooked body of mine is hard, I must say
But I manage to move myself even when my body wants to stay.

I do Tai Chi from videos on my computer and then I meditate
This helps me to maintain my balance and improves my heart rate.
Relaxing my limbs as I meditate, It's as if I rid myself of that added weight.

Joy is something I want to always display
Even when things may seem a little grey
Life is full of wonders to do and see
So thank you Lord for being with me.

It All Begins With A Dream

I let my mind wander as I began my meditation
I could feel the pain leaving my body, a wonderful salvation.
I could vision myself floating up high in the sky
I could see children playing ball in the field nearby.

Seeing my neighbor taking his morning walk
I saw others walking and stopping to talk
It was time to come back to myself once again.
This is how my day always begins.

Life can be full of ups and downs
It's time to smile, and let go of those frowns
Always feel good of what you can do
Don't let in those Parkinson's blues.

We have many talents, of that I am sure.

Our dreams are beautiful, and our heart is pure.

Let yourself go and begin to explore.

Get back on Track

There are moments that we just don't what to get out of bed

Or we just what to give up and feel like we will soon be dead

But, no matter what, don't throw in the towel

Take that look off your face, it looks like a scowl.

We must push ourselves to get back on track

There is no time to give up and slack. 

We all have moments of feeling like this

You are worth more than that, so please don't quit

By getting up and moving just a little bit

Do a little more each day, in time you will feel fit

This process may be quite slow

But through this process, your body and mind will grow.

No matter the circumstances, with great effort we should always try. 

We must pick ourselves up, when we get bruised and at times cry. 

The way we live it, is up to us, 

With a negative or with a plus.

Life's too short, time won't freeze, 

Especially with Parkinson's disease

Enjoy it all, won't you please?

All those pills

Taking all those pills each day is a pain

Upsetting our bodies in every way

Remembering and following the schedule

Helping to overcome our off-times is essential

By taking those pills helps our bodies move

Nausea can follow, we just want to improve

We may get dyskinesia, our bodies are jerking

Our body moves on it's own as if it is overworking.

Quite a few of us, have a dry mouth and dry eyes

We take more medicine to help, is that our prize?

Many have constipation or diarrhea with all of this

Giving us hemorrhoids is for the pits.

More outpatient surgery, I must admit.

Some have side effects of gambling, sex or shopping addictions

It can ruin families, put you in debt and possible convictions.

We move slowly or shuffle our feet as we walk

Using a cane, a walker or a wheel chair, as some may gawk

Some of us may even whisper as we talk

Yes there are times, we have no control on our bodily functions

We may have to wear ,"Depends" (diaper), when our bodily fluids malfunctions.

Sometimes we feel almost normal

Other times, we could use an epidural

To rid these unwanted miseries away

Is it too much to ask, for a better way

Just one pill each and every day!

We are Complete Opposites

We are complete opposites, except for Parkinson's disease
The good thing about it, is sharing our lives, you see
We are in this together, loneliness is hard for you and me

Many of us, used to multitask and do all kinds of things
As the years have past, it is difficult even to sing

We live in different areas, but we have this connection
We have Parkinson's and there is no worry for rejection
Because no one truly understands the what we feel
Our friends, and love ones try, but they never will.

We, you and I, are together in this fight to slow Parkinson's down
Doing all that we can, to help one another to continue to be around
We may have days that we need one another's shoulder to lean on
Together we will help each other by doing when called upon.

Yes, we can be complete opposites, but we draw strength from one another.
With this thing called Parkinson's disease, we are warriors for each other!

Together, we can make a difference

We all have a beautiful light within

We All Have a Beautiful Light Within

We just sometimes forget it is there

We work hard to bring it out, to be fair

It is difficult for most, just to fight this disease

Our love ones hurt too, so help them feel at ease.

Place your hand in theirs, would you please?

This special moment shows that you care

Remember it is hard for them to see you when you are in despair

Don't even think just do it, you'll be surprised to feel the connection

By doing so, other's can feel that you still have affection.

Some of us may have a mask face, and unable to smile

Don't be ashamed, a slight touch or hug shows your not hostile

Let others know, that this is what Parkinson's can do

You may or not have those tremors too.

Some of us, have a difficult time trying to walk

We may freeze, or shuffle our feet, while some people may gawk

Don't be angry, without knowledge of this disease, 

Some people may think your drunk,  so don't get upset please

Feel proud that you are a warrior fighting to win

God's gift is that beautiful light that you have within

So Much To Do, So Little desire To Do It

Have you ever had these days?
For most of us with Parkinson's, this is how we feel in every way.
But in order to feel better and have more energy
We have to make ourselves move, or we will feel miserably.

I start each morning feeling blessed that I am here another day
I always thank our Lord each morning and night this is just my way

I like to turn the computer on, and exercise to Tai Chi
It helps me with my balance and it is good for me.
I like to take a walk or ride my trike too.
Exercise helps me rid myself of those Parkinson's blues

After completing these things, my meditation begins
Relaxing my mind and body, seeing myself flying in the wind.
Soaring high up in the sky, with  my wings spread so wide
I float down from the clouds and open my eyes.
What a wonderful day, I'm so glad I'm alive.