About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, March 9, 2015

Things will never go back to how it use to be.




There comes a time in my life when
I realize I can never go back to the way it use to be
Some people make such a strife
I can't change it, but I can hope for others and me.

I would just like to go without the constant pain
I have everything to live for and all to gain.
I am thankful for being alive
Knowing God is by my side.

I enjoy seeing nature in the wild
Fortunately, the weather has been mild
It offers so much, open your eyes, 
Hope of today, with every sunrise.

I love to watch the sunset each night
and see the night's stars up above
It is such a beautiful sight.

As I watch, I can feel God's love.

Saturday, March 7, 2015

I sit in my Rocker



I sit in my rocker and rock away
Thinking how wonderful life is today
I completed my task, and it's almost noon.
Gleefully, I am singing a happy tune.

As I look through my sliding glass doors
I saw my neighbor doing his housework chores.
I walked out on my lanai, and we talked for awhile.
We ended our chat, each with a smile.

As I turned to come inside
I saw the gator floating by
I can't pretend, 
I am scared of them.

I took my dog for a walk
All of a sudden a hawk flew over
I tried to run for cover
I got splatter on my head
This is when I wish I wore a hat
I should have thought of that
I couldn't even say any words
I went home and took a shower
To feel clean and smell like a flower.
Back in my rocker I sit and smile
I think it's funny, as I laugh for awhile.



Friday, March 6, 2015

I Am Trying My Best



Each Morning I try the best that I can
To move this body of mine
I continue this all of the time.
I exercise, meditate, concentrate
on being positive that is my plan
I will not procrastinate.

This is my way of fighting Parkinson's disease
Some days are harder than others
I find as time passes by, it takes longer to achieve
There are times I want to stay under my covers
But I push myself forward,
to insure I'm moving onward
so I can move this body of mine

It is difficult, I must confess
when my dystonia does not cumber
the pain makes me depressed
My toes curl under
and my feet twist inward
I feel so injured.

But with all of this, I fight to overcome these things
I thank God for the love he gives
Life gives me challenges to face
This challenge I can overcome, with God's grace.


Thursday, March 5, 2015

Strength & Courage





Joy is something I like to display, 
Even when times, are a little grey.
I have this strength inside of me
to fight Parkinson's Disease.
I will do whatever is needed
to insure I am not defeated.

I could just give in and pout
but I want to live and shout.
Life is full of negative things
I like to feel the positive it brings.
God has given me another day
I just can't sit and waste it away.

I have some days when it is hard to cope
But I always believe in the word," Hope"


Tuesday, March 3, 2015

My Wheel Chair



This is my Power Wheel Chair,
as I sit in it, I say a short Prayer.
I am thankful for my chair
I can ride it anywhere.
I use it when it is necessary,
but I wish it were an accessory.

It can raise each leg individual

or if I want together.
It makes my life more livable.
It will also recline, if I want to rest
It is very comfortable, I am blessed

I must be honest and confess

I do everything possible so I don't regress.
I look at my chair, and I only use it when I must.
When needed it is a big plus.

Even on the days that it is needed

I still do exercise even when I am seated
When I go shopping, a wheelchair is used
So I don't lose my balance and be all bruised.

Yes this is my wheelchair and I am blessed

Thank you God, for letting me have the best!




Monday, March 2, 2015

Every single day we must make a choice





I took a train ride enjoying the surroundings
Hoping to see something astounding

As I turned and looked across from me,
I saw a man, looking miserably.
I asked if there was something wrong,
His voice was very strong and willfully 
saying, soon it will be the end for me.
He said I just learned I am in the first stage of
Parkinson's disease.

I said I had symptoms when I was thirty eight
after many years, I finally found the right doctor, 
who set me straight
That was eleven years ago, I can move, just not straight.
I said you are just a newbe, so learn all that you can.
Exercise like crazy and live life fully, don't just give up
or you will be dying as you seem to had that as your plan.

He began to smile. and asked if we could talk for awhile.
He stated he was planning to get his things in order
and quit his job as a news reporter.
As a reporter he will research and learn what he could
But he will begin, by telling his family and friends
He thank me as train came to an end.

Sunday, March 1, 2015

The point is to love, what you are doing




The point is to love, what you are doing, 
Your deepest passions; should be pursuing. 

Every moment, live excited, 

Every morning, be delighted. 

Always look forward, to what is ahead, 
Your wisdom, gracefully spread. 


Moving slow as a turtle
helps me to get over the hurdle
The beauty that nature surrounds
So much to see with wondrous sounds
In everyone's life there is so much potential
Always give them love that truly is essential