About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, September 26, 2016

It all begins In your mind





As I woke up this morning, I thanked the Lord for giving me this day
At times I feel so alone with the disease, my life continues this way
Then I go into my bathroom and look in the mirror and say
" Life is full of hard knocks, be thankful that you are here each day"
Giving up and feeling depressed will make you worse in in so many ways

These negative times, can make us feel inadequate
So let's learn to be the heavy weight, and start to activate

Feeling good about yourself each moment in your life is a fantasy.
We must learn ways, to grasp the good and let that be our normality.

We all have bad days and it is ok to feel down at times
Don't feel guilty that you can't feel positive and act like all is fine.
Practice telling yourself, each step that you take to overcome any negative
Whether it is going outside or talking to someone, will help you feel positive.

Remember - It all begins in your mind 

Now - this very moment, you can begin to shine!

Thursday, September 8, 2016

Sometimes we have to Remind Ourselves






So many times, I hear, we are getting closer to a cure
How many times, they say, get involved to fund a little more
In the past year or so, they discovered more now than ever before
You may have to remind yourself, we are so close
I will never, ever give up hope

Whenever it is possible, I volunteer to do clinical trials
I am hopeful that I don't end up to be  just another file.
I have taken charge of fundraisers in the past
But I must admit, as time has passed, I am running out of gas

I am still involved with clinical trials, my blogs and seminars
But traveling and raising funds, will just be in my memoirs
I gave up my car keys, because of my slow reaction
When I become nervous, the tremors are worse and another distraction.

Sharing and caring about others is what I foresee
Although Parkinson's is a part of me, it's not all that is wrong with me
Exercise, meditating, positive thinking keeps me going you see.

Most important to me are my family, friends and Our Lord, Jesus Christ
I can not complain, knowing that the Son of God had sacrificed

Tuesday, September 6, 2016

Many Times You Have To Try.



There have been times when I would only sleep three to four hours a night
I was on the computer or talking to Parkinson's friends thinking it was alright
The day finally came and I said this has to end
I decided to go to bed and relax and it has been a godsend
It didn't happen over night and I wasn't willing to bale out.
In fact that took several months, but it all came about.

I have learned over the years, no matter what the circumstance,
We should do what is necessary and take chances
Never knowing unless you make the effort to try
Even if we fail, just don't give in and go on stand-by
But have patience, and even if there is little change
You gave it your all, for it may be out of range

Always, keep that drive you have within
Pushing harder each day, until you win!