About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Friday, August 26, 2016

Our Family Memories




Precious times watching our son and daughter grow
They both make us so proud, we could just glow

Memories of our first grandchild, Kristina, was such a gift
But living a thousand miles away, those precious times we missed
Then came our step granddaughter, Angela another gift
Times moved forward, looking back only wish we never missed
Watching them grow into beautiful caring ladies
We are proud grandparents more now than when they were babies

 Our daughter lives forty miles from us
Watching the birth of our granddaughter Madison was a plus
Then came along our grandson Grant, just 18 months apart
They are just so lovable and a pair of sweethearts.
Yes we are proud grandparents and have so much love for all
Our family makes us so proud, if we could grow, we would be 10 feet tall.

 We have been blessed with so many good friends over the years
Moving throughout the United States and Japan, leaving with tears
My husband was a Marine, so we moved quite often 
After settling down in Florida, I guess our next move will be a coffin.

 But we continue to make memories, as our lives go onward
Enjoying fun times with our friends, as time moves forward
Parkinson's slows me down, but I do the best I can
Enjoying our lives with one another, that is our plan.

 We think positive with life's ups and downs
Feeling so blessed that we are still around.
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Monday, August 15, 2016

A Poem written by My Dear Friend, Jim Evridge

I lost a Dear Friend on July 19, 2016, Jim Evridge Jr., because of  stage 4 Emphysema "AKA:SILVERFOXX-FIGHTING BACK".

Jim had Parkinson's disease and helped many of us suffering with Parkinson's disease through the years. We sometimes laughed, shared memories, knowledge and most of all friendship. My husband Larry and I were able to visit Jim and Kathy a few years ago, when they came to Florida, Wow- what a treat! Such a wonderful caring couple.  Jim gave me permission to use his poem. It has always been on this site, since I began this blog.

 I want to share the poem he wrote:


We have PD .. 

We are a kindred spirit
We cope as best as we can against terrible odds.
We sometimes succeed sometimes we fail sadly,
But we never give up, or give into it.
We rely on each other
We lean on each other
We cry with each other 
We dry each other’s tears.
We love one another like. no other love felt
We lift each other up
We compliment each other.
We share our joys.
We share our misgivings.
We learn from each other.
We care for each other.
We understand.
We try our best to defy the odds,
Against this evil monster … PD.
We fight with everything we have.
We shall never give up our cause.
We shall never give into it.
We have PD


Together you and I, whoever and wherever you are equals “WE”.

Written by Jim Evridge.

No more suffering, dear Jim. You were a true fighter!

"Sometimes our light goes out but is blown into a flame by another human being. Each of us owes our deepest thanks to those who have rekindled that light."   Albert Schweitzer 
"Always remember to be thankful for what you have. There are those less fortunate than you and I who have hope in their hearts and prayers of thanks on their lips."   Jim Evridge AKA:Silverfoxx_Fighting_Back    
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Sunday, August 7, 2016

Our struggles






Many times we have to struggle
When we have troubles
But we continue to fight
At anytime, day or night

Our life depends on not giving in
Even when we feel like we are out on a limb
Pushing and moving when we can barely move
We do this each day, to make sure we improve
Parkinson’s won’t win as long as we are together
We will begin to feel as light as a feather.

No more feeling as if we were carrying weights
Gliding smoothly as if we had on skates
These wonderful memories gives us hope
Helping us to be able to cope

Having family and friends so dear
Helping us fight without any fears

Being together we will continue to endure.
Until the day comes when there is a cure!






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