About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, May 25, 2016

It All Begins With A Dream





I let my mind wander as I began my meditation
I could feel the pain leaving my body, a wonderful salvation.
I could vision myself floating up high in the sky
I could see children playing ball in the field nearby.

 Seeing my neighbor taking his morning walk
I saw others walking and stopping to talk
It was time to come back to myself once again.
This is how my day always begins.

 Life can be full of ups and downs
It's time to smile, and let go of those frowns
Always feel good of what you can do
Don't let in those Parkinson's blues.

 We have many talents, of that I am sure.
Our dreams are beautiful, and our heart is pure.
Let yourself go and begin to explore.


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Wednesday, May 18, 2016

Get back on Track



There are moments that we just don't what to get out of bed
Or we just what to give up and feel like we will soon be dead
But, no matter what, don't throw in the towel
Take that look off your face, it looks like a scowl.

We must push ourselves to get back on track
There is no time to give up and slack. 
We all have moments of feeling like this
You are worth more than that, so please don't quit
By getting up and moving just a little bit
Do a little more each day, in time you will feel fit

This process may be quite slow
But through this process, your body and mind will grow.
No matter the circumstances, with great effort we should always try. 
We must pick ourselves up, when we get bruised and at times cry. 

The way we live it, is up to us, 
With a negative or with a plus.
Life's too short, time won't freeze, 
Especially with Parkinson's disease
Enjoy it all, won't you please?
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Tuesday, May 3, 2016

All those pills



Taking all those pills each day is a pain
Upsetting our bodies in every way
Remembering and following the schedule
Helping to overcome our off-times is essential

By taking those pills helps our bodies move
Nausea can follow, we just want to improve
We may get dyskinesia, our bodies are jerking
Our body moves on it's own as if it is overworking.

Quite a few of us, have a dry mouth and dry eyes
We take more medicine to help, is that our prize?
Many have constipation or diarrhea with all of this
Giving us hemorrhoids is for the pits.
More outpatient surgery, I must admit.

Some have side effects of gambling, sex or shopping addictions
It can ruin families, put you in debt and possible convictions.

We move slowly or shuffle our feet as we walk
Using a cane, a walker or a wheel chair, as some may gawk
Some of us may even whisper as we talk
Yes there are times, we have no control on our bodily functions
We may have to wear ,"Depends" (diaper), when our bodily fluids malfunctions.

Sometimes we feel almost normal
Other times, we could use an epidural
To rid these unwanted miseries away
Is it too much to ask, for a better way
Just one pill each and every day!

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