About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Saturday, January 30, 2016

IT'S IS UP TO YOU!



To get out of that slump and rid yourself of the Parkinson's blues
Look around and see the beauty of nature, it is up to you


Each day you are here on God's green earth
By watching the beauty of animals giving birth
Seeing a butterfly fly around a plant
Watching a mound being built by ants.

The beauty of Nature is for all to experience
Realize that nature is glorious and mysterious.
Have you ever dreamed of flying way up in the sky
Watching nature helps you enjoy life, so you don't cry.

Have you seen a falling star in the evening
and made a wish, it's a little bit like dreaming
It doesn't matter how old we are.
Each one of us is God's star!


Monday, January 25, 2016

Doing my Exercises





I decided to do something different today
Doing my morning exercises  
I stand in my archway
To make sure, I keep my balance
As I lift my weights, I am getting a callus

I continue to do different things
But I don't want it to be just a fling
I like to be challenged as long as I don't fall.
I just don't want it to be boring at all 

Exercise helps rid my body of being stiff
I feel better mentally, as well as physically fit

Fighting Parkinson's with all my grit.
This the reason, I will never quit


Sunday, January 24, 2016

Believe



As long as I don't quit, I will continue to try and not give in.
I have the will-power to continue, that's the way it has always been.
I always try to wake up in a positive mood, feeling delighted
So many of us with Parkinson's disease, I feel we are all united.

I am only one, but we share the things only we understand
So together we are a team and we must take a stand
To believe we can do whatever is ahead
Our thoughts and wisdom, we can gradually spread

We can shout and spread good cheer
We can wipe each other's tears.
Our tender hearts, we really care
Knowing at times, it can be hard to bare.

We must never give in to any type of fear
Always remember, as a team someone will be here.
Just Believe!



Sunday, January 17, 2016

An Incident at the mall



At times when I walk, I drag my leg or shuffle my feet
I hope I don't freeze, as I listen to music with a beat.
I was in the mall, shopping, moving at a slow pace
Sometimes, parkinson's shows it's ugly face

As I was looking at clothing, I began to loose my balance

I fell against the rack, causing loud noises, and then silence
I  felt some pain and opened my eyes to disbelief,
rows of clothes lay beside me and underneath

As I tried to get up, I was dizzy and was told "lay still",

I saw people staring, taking pictures as if I were a thrill
I closed my eyes and didn't move a wink
I was so embarrassed I didn't want to think.
After stating that I was alright
He helped me up and Oh what a site

As I got up, I heard the clapping of applause
People were not staring for a thrill at all
They let me know they cared after-all.



(This is fiction - but I wanted to share, sometimes I feel people staring at me
and I realize we should not make a quick judgement just because they stared).

Tuesday, January 12, 2016

I want to Inspire people



As you can see, there is a part of me
Wanting to inspire people with Parkinson's disease

We all have moments when we want to throw in the towel
Sometimes we feel like that, every once in a while
Thank goodness, we overcome those feelings and realize
We are fighters and will not give in or say our goodbyes.

Try filling your heart with love and laughter
We know a cure is being sought after

Every now and then write down good things that happen
I like to save them in a journal, to read when I am sadden
Each day I thank the Lord for giving me another day
I do my best to think positive thoughts, to keep those blues away

Sunday, January 10, 2016

4 Powerful Poems about Parkinson's and Growing Older | Robin Morgan | TE...



Very good, I wanted to share

Published on Oct 15, 2015
When poet Robin Morgan found herself facing Parkinson’s disease, she distilled her experiences into these four quietly powerful poems — meditating on age, loss, and the simple power of noticing.

TEDTalks is a daily video podcast of the best talks and performances from the TED Conference, where the world's leading thinkers and doers give the talk of their lives in 18 minutes (or less). Look for talks on Technology, Entertainment and Design -- plus science, business, global issues, the arts and much more.

Sunday, January 3, 2016

A New Year - A New Beginning



Having Parkinson's disease is a constant drain
With our daily stiffness, tremors and even pain
No one truly knows the pain you have inside
Somedays you feel like you could runaway and hide

Your life is worth living, so lets really try
Even if you feel like you want to die
Let's work together to build your self esteem
We can all share by working as a team.

Let's focus on our physical needs and social needs
Our physical needs, help with exercising indeed
Social needs, are being with family and friends
Enjoying the time, and laughter is a wonderful blend

So if you try to do little each and every day
Maybe some of your problems may fade away.
Please have a blessed day!