About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Monday, November 23, 2015

Thank you dear Lord!




Thank you for the days I am here
I appreciate my families, I hold so dear
When I was diagnosed with Parkinson's disease
My husband Larry and you,  dear Lord were with me.
You gave me strength and power to foresee
When I had my stroke, you were with me
Through hard work and courage I was able to conquer it
I realized that without you, I could never be able to win.
Thank you dear Heavenly Father.

I feel so blessed to have you with me
I am thankful for the people I meet
The friends that I have, including my on-line friends.
I will value their friendship forever, until the very end.

Thank you for giving me the love of caring for others
Without you, why would I even bother.
My love of life is within me, to carry on
Even when I fall and get up each and every morn

Thank you !

Saturday, November 21, 2015

Thanksgiving Day





Thanksgiving is here, so our minds have turned
To what time has taught us, to what we've learned
We are grateful for our family and friends
As well as our Parkinson's and Facebook friends
Our love is with them, even at the very end
So many memories we have made
All the towns and cities we have stayed.
Seeing nature like it use to be
It would be nice if all could see
The grizzly bears with their young
And the beaver building a dam so strong
Sitting on the lanai and feeling the breeze
Watching the alligator floating along, so free

Remembering my first Parkinson's Unity Walk
In Central Park, enjoying the people as we talked

We wish you a Thanksgiving you'll never forget,
Full of love and joy—your best one yet!

Dear Lord, We give our thanks to thee.
For always being with you and me.


Wednesday, November 18, 2015

What does a person with Parkinson's disease look like?





OLDER
YOUNG














When hearing that someone has Parkinson's disease

What do you think that person would be
You typically think of someone old with tremors
The youngest person was 3 years old, this is not a rumor
A 12 year old is living now with this disease
Now that we are in the computer age
Knowledge is just a click away
But it is important to verify and not be swayed

Parkinson's is showing up in the younger generation
I want all to be aware and share this information
We may be on our medication, and show no signs
So please don't judge or try to read between the lines
 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~



Famous people diagnosed age 50 and younger:

Michael J. Fox was 29,Muhammad Ali was 42, Brian Grant ( NBA)was 37
Maurice White (Earth, Wind & Fire) age 50

Tuesday, November 17, 2015

Let's don't be angry




Let's don't be angry
Or even a little cranky
Why can't we try to be happy
Just act a little wacky

It's time to rid ourselves of dread
Let's act like a kid instead
What's wrong with playing music
Singing is very therapeutic

Let's all get up and do the hokey-Pokey
Or we could just have fun with karaoke
Our voices may be bad
But who cares, as long as we're not sad

Laugh at yourself and have fun 
Go out and get some sun
You will feel better, in the long run.


Thursday, November 12, 2015

Friendship is so important to all people

People say to my husband, I haven't seen your wife riding her trike
Is she alright?


"NOBODY NOTICES WHAT I DO, UNTIL I DON'T DO IT"


"I can’t withsd the pain of being invisible, being nothing, being unloved, unwanted, undesired, I am nothing but invisible or a shadow of a person who has already died inside. I am not asking for sympathy "
This quote came from a professor who was contemplating suicide.
So I decided to write this poem:


Friendship is so important to all people

If I could  get up and move, would you include me?
If I could exercise in your group, would I be accepted too
If I could sing like your friends, or get involved like you can
maybe, just maybe, I could be apart of a group and not just a fan.

But it is hard to be me. I am not a phony
I act like all is fine, but that is all baloney
Being a person who can't play cards, and gets confused
Being so lonely, makes me want to blow a fuse

I am a nice person, with a disease
I want to believe, that one day you will see
How much it would mean to me
Just a call or even a hello
Makes me feel like a normal fellow

I do what I possibly can, to live the way I have to
Watching people doing what I use to do
It is difficult but I don't have a choice
I am speaking, for those who don't have voice

So please don't ignore those with an illness or a disease
Having true friends is what we all need


Sunday, November 8, 2015

Be Gentle With Yourself




You are doing the best that you can
As long as you move, that's the best plan.
It doesn't matter whether you are fast or slow
Just let your body move as you go.

No matter the circumstances, we should always try. 
We must pick ourselves up, when we get bruised and cry.
Fighting this disease is what we must do
Exercise, meditation and medicine, helps to slow it too.

Remember to enjoy life and fight those parkinson's blues
Try to laugh and think positive, instead of blowing a fuse.
Our life is too short and time won't freeze,
So enjoy it all, won't you please?

Wednesday, November 4, 2015

We Live With Hope




We are together with Parkinson's disease
Live today to our fullest, not knowing what tomorrow will be
With Positive thinking and exercising our bodies
Hope is how we live, it's not a hobby




What kind of day will it be?
We live with Hope, yes you and me.
Because of our Parkinson's disease.
Each day we rise, is a blessed day
Thanking God, as we pray

As the scientist continue to research this disease
Making it a step closer to finding hope for you and me.
I for one, continue to volunteer in clinical trials
Hoping one day, we will all have plenty of smiles.