About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Friday, July 31, 2015

I will not be held hostage


How many times do we feel having PD is is holding us back
I have these feelings, but I will not give in to this attack
I continuously try to overcome this hold of depression
I will not let it come into my brain and take possession.

I try to rid my body of rigidness
Honestly I will not be resistless
With the grace of God, within me 
I feel the power that's set me free.

I don't look at what I can't do
That would make me feel blue
I look at all my possibilities
Not at my disabilities.
Don't just sit and feel like a hostage
and bury your head like a ostrich.

We have many things wrong with us
But let's dwell on all of the good as a plus
I want to inspire others and always do 
By encouraging others to do it too.

I care about other's who have this disease
I hope you enjoy these writings by me

Monday, July 27, 2015

We heal by being together and sharing



Being together and sharing one another's ups and downs
Helps all of us, to overcome the things that make us frown

We share our feelings as well as our doubts and fears

Often, we try to encourage others to wipe away the tears
There is no room for judging others, or demean them in any way
It's important to do whatever we can, when one is in dismay

Sharing our knowledge and experience helps us all learn

This is the best way, since some don't know where to turn.
Join a local group, as well as groups on the internet
Research information helps all to be literate.

Exercise in a group or at home if at all possible
Exercising each day is not optional.
This helps to slow down Parkinson's disease
Take a few minutes to meditate please.
Relaxing your mind and feeling at ease.

Togetherness helps us all to be strong
It makes us feel like we belong.

Thursday, July 23, 2015

Believe in Yourself -You can do it





If you Believe in yourself, you can do it.
Always try your best and never quit.
Thank the Lord for being alive
This is the beginning to survive.

By taking a step and then another
It's perfectly fine if your not a runner
As long as you move your legs and/or arms
You are doing good and not creating harm.

By striving in whatever you do
There is always pride flowing out of you!
Enjoy life whenever it is possible
Knowing you, you're always responsible

People can feel the genuine warmth that you spread
Your caring heart is welcoming, just like home-made bread 


Tuesday, July 21, 2015

Never stop making wishes





I never stop making wishes
This helps me feel ambitious
I do all that I can possibly do
To rid myself of the Parkinson's blues

There is no reason to be a bore
Open the door, let's explore
Have you ever sat and wished for more
I want to fly up in the sky and soar
Eat all the treats in the candy store

I know for certain, my wishes for health
Must be turn over to the Lord, Himself
But I must try to be the best that I can be
God will guide and strengthen me.


Sunday, July 19, 2015

All things are possible







There are times in our life, we may have sorrow and grief
Sometimes it's just unfairly brief
We may have daily struggles and/or even pain
It makes our body and mind feel totally drained
We all may have moments that we feel so empty and alone
Our anxiety may take over and we become depression prone.
With Parkinson's disease we often struggle and suffer
After awhile we learn from this and we become tougher.

Every step we take by getting out and not being alone
Leaves no time to feel pity to moan and grown
If we are unable to go out, call someone on the phone

We have power to slow down PD and be unstoppable
With God on our side, all things are possible.

Friday, July 17, 2015

Things



The way to build self-esteem is to believe that you can
Happiness is being positive even without a plan
Interacting with others, is a wonderful way to live
New adventures discovered, let's share and give
Good things happen, as we continue this trend
Such a fabulous way to live until the very end.

Can be achieved
All to believe
Now

Happiness
Attitude
Patience
Peacefulness
Everlasting
Necessary

 Things Can Happen


Tuesday, July 14, 2015

Just one of those days.



This morning began pretty good until I noticed I was  clumsy.
Off to the grocery store we went, I was getting pretty hungry

I decided to wait until we came home, and I was dropping quite a few things
As I was carrying the filled candy jar to the pantry it fell, I wish it had wings

But reality hit, and glass shattered going everywhere.
At that moment I knew I was off, and frozen in despair
My hubby cleaned it up, helping me to sit on the chair

When this happens my tremors become quite evident
He was there to let me know it was just an accident.

 Larry is my caregiver, my best friend and my soul mate.

I am truly blessed.


Sunday, July 12, 2015

Hiking up a mountain






I was hiking with my husband up the mountain side
We came upon a stream to rest, feeling with pride
I made it this far without breaking my stride.

I heard a noise and turned, I saw a moose in the stream
How surreal it seems, could it be a dream?
I sat there motionless, and saw my hubby looking too. 
Watching the moose drinking water, oh what a view.

It was time to get moving to the top of the mountain we go.
There was a chill in the air and the wind began to blow.
We saw deer at a distance as we continued to hike
Reaching the top was worth it to see the beautiful sight.

The sky was blue with big puffy white clouds
Feeling in awl, so peaceful and no crowds.
God made our earth with love in his heart
Thank you God for letting me see your beautiful art.

Thursday, July 9, 2015

Pain never goes away.




Everyday is a struggle to get up and get moving
But once the medicine kicks in then I am improving
My walk is becoming more like a shuffle
Sometimes it can be a struggle

Especially on nights, when my toes curl under and feet turn inward
It feels like my feet are being twisted off of my legs, making me feel injured.
I take Botox for this type of dystonia, but it is not working like it use to
I lay awake and pray to our Lord, that tomorrow will be good for me and you.

I always try to look at the bright side and think positive
I have no room for thinking negative
God has blessed me, that I am alive
I will continue to have this drive

Sunday, July 5, 2015

Togetherness


Some of us need assistance like a walker, cane, or wheelchair to move.
I give them credit for not lying around and watching the boob-tube
Even if you are in a wheel chair, you may be able to move a part of your body
Joining an exercise class, meeting people or learning one another's hobby

Being together and sharing one another's life

Is a wonderful way to care, so there is no strife
Spending time with others, makes you feel brand new
This is a great way to overcome those Parkinson's blues

It's wonderful to see everyone coming together as if it were their destiny,
Seeing the smiles on their faces and hugging each other with certainty
We will continue to enjoy our lives, together we shall remain
Always knowing that we may not see one another again

Togetherness is living our lives to the fullest.


Friday, July 3, 2015

I am able to Cope




If I were the type that moaned and groaned
Why would anyone want to come to my home
When the blahs begin to get you down
There just isn't any time to sit and frown
I do all that I can to be able to cope
I can never give up and live without hope
There is absolutely nothing that I can't achieve
That's what I honestly and sincerely believe
This progressive disease I've had for years
Each day I am thankful for still being here.