About me
As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.
Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.
Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.
I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.
When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.
But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .
Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.
I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.
God Bless,
Margie
Larry & Margie
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Friday, July 31, 2015
I will not be held hostage
Monday, July 27, 2015
We heal by being together and sharing
Being together and sharing one another's ups and downs
Helps all of us, to overcome the things that make us frown
We share our feelings as well as our doubts and fears
Often, we try to encourage others to wipe away the tears
There is no room for judging others, or demean them in any way
It's important to do whatever we can, when one is in dismay
Sharing our knowledge and experience helps us all learn
This is the best way, since some don't know where to turn.
Join a local group, as well as groups on the internet
Research information helps all to be literate.
Exercise in a group or at home if at all possible
Exercising each day is not optional.
This helps to slow down Parkinson's disease
Take a few minutes to meditate please.
Relaxing your mind and feeling at ease.
Togetherness helps us all to be strong
It makes us feel like we belong.
Thursday, July 23, 2015
Believe in Yourself -You can do it
Tuesday, July 21, 2015
Never stop making wishes
Sunday, July 19, 2015
All things are possible
Friday, July 17, 2015
Things
Tuesday, July 14, 2015
Just one of those days.
Sunday, July 12, 2015
Hiking up a mountain
I was hiking with my husband up the mountain side
The sky was blue with big puffy white clouds
Feeling in awl, so peaceful and no crowds.
God made our earth with love in his heart
Thank you God for letting me see your beautiful art.
Thursday, July 9, 2015
Pain never goes away.
Sunday, July 5, 2015
Togetherness
I give them credit for not lying around and watching the boob-tube
Even if you are in a wheel chair, you may be able to move a part of your body
Joining an exercise class, meeting people or learning one another's hobby
Being together and sharing one another's life
Is a wonderful way to care, so there is no strife
Spending time with others, makes you feel brand new
This is a great way to overcome those Parkinson's blues
It's wonderful to see everyone coming together as if it were their destiny,
Seeing the smiles on their faces and hugging each other with certainty
We will continue to enjoy our lives, together we shall remain
Always knowing that we may not see one another again
Togetherness is living our lives to the fullest.
Friday, July 3, 2015
I am able to Cope
If I were the type that moaned and groaned
Why would anyone want to come to my home
When the blahs begin to get you down
There just isn't any time to sit and frown
I do all that I can to be able to cope
I can never give up and live without hope
There is absolutely nothing that I can't achieve
That's what I honestly and sincerely believe
This progressive disease I've had for years
Each day I am thankful for still being here.