About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Tuesday, April 28, 2015

Nature




Nature offers so much, just open your eyes
There is hope each day, with every sunrise
It is so exciting and adventurous too
There is so much more than a sky that is blue.

Walking on the beach, ocean waves begin to come ashore.
With my pail in hand, I picked up shells, as I explore
Shells are pretty with different shape and colors
Placing them back for others to discover.

The forest has such a serene nature in it's own
While taking a hike I saw a deer fully grown
I listen to the water falls high above
In a tree there were two busy doves.

Each day feel blessed to see such beauty
I thank the Lord, for sharing this, truly.


Saturday, April 25, 2015

My Parkinson's Disease


2008 Meridith and me



 I noticed during stressful times my right hand would shake.
The doctors said it was my nerves for heaven's sake.
After many years, the shakes only appeared now and then
Then I began dragging my leg, off to the doctors I went
After many types of test, they all came back negative
The doctor sent me to a neurologist who had a specialty
It was a movement specialist, testing and watching me
and told me that it was Parkinson's disease.

I had a stroke paralyzing my left side.
After a year of strenuous therapy I cried
I regained 99% of my body back to me
I am so grateful, can't you see

That was the beginning of my journey
knowledge is what I was yearning
Parkinson's disease is what I was learning
through reading, seminars and research

I decided to place all the information on my blog
to share with others without living in a fog
I know that exercise and meditation helps us all
I pick myself up even if I were to fall.

I give seminars to all that will listen
I feel that is a part of my mission
At times I may Pause while I speak
It doesn't mean that I am weak



Living life to the fullest is important to me
I do all that I can to fight this disease
I thank the Lord for always being with me.


Wednesday, April 22, 2015

How Great Life Can Be





How great life can be
Just like a bird that has flown from a tree
Just Believe 
You are alive and breathing on your own
Don't just sit around and moan and groan
Just Believe

There is so much I enjoy doing and want to see
I don't want to watch others have fun
when I know it could be me
I am slow and I know I can't run
But I try to do all, even if I fall.
I like to swim in the pool and sit in the hot tub
While listening to the sounds of nature.
It's a pretty sight seeing the birds in the shrub
All of this beauty is from our creator.
There are some days harder than other days
But you can move and you will be amazed
Just Believe

Look at the beautiful sunset
I promise you will never regret
As the night begins, and the moon shines
This is the beauty we can see all of the time
Look at the stars high above,
You can see it is a labor of love
Thank you God for all you do
I am so grateful for you!

Sunday, April 19, 2015

No Complaints - Be Happy!






What a beautiful morning. Listening to the sounds of nature. watching my husband Larry enjoying a swim in our Pool. I am here, enjoying my husband, my dog Spencer and the beautiful sites and sounds for us to enjoy by God.


There is nothing I can complain about
I could be an old grouch.
I have aches, pains and could share my misery.
But what would be left is being bitterly.
I like to smile while I am able
I place my good dishes on the table.
I use all of my good things
To enjoy what life may bring.
I don't plan to sit and wait
There is no time for fate
I want to live and enjoy each day
Do all I can to keep PD at bay.

I love to laugh, sing and dance
Life for me, is what I push myself to do
I want to take a chance
I will fight to get rid of the blues.
I believe that the Lord is with me too.
Happiness is such a joyful thing
You may be surprised at what it may bring

Friday, April 17, 2015

Courage




There are times we struggle and suffer
That's what makes us much more tougher
We may have daily struggles and even pain
that can make our mind and body feel so drained

We have amazing strength deep inside
You will find if if you try.
Courage and belief is what we need
I am sure everyone has it, yes indeed

There absolutely nothing we can't achieve
That's what I honestly and truly believe.

Live each and every single day
Act like a child and stop and play
Life is precious, we've been blessed
Choices is ours, we must choose our quest.


Tuesday, April 14, 2015

Giving Thanks for This Day

There are times when I get up in the mornings
I have a difficult time getting my body to move.
I take my medicine and slowly my body comes alive.



As I thank God for giving me another day
I have this positive feeling come my way.
As I get on my feet, I begin to shuffle
Somedays, it can be a bit of a struggle.
I look in the mirror and smile
I think I'll stick around for a while.

This morning as I drank my coffee on the lanai
I watched a Sandhill Crane come down from the sky 
and landed in my yard.
It's been a while since I've seen one this close
As I was getting up to take a picture, my feet froze
I missed this opportunity, that I wanted the most.

There will be another day I'm sure.
Each day, I love seeing nature even more.
This evening a storm came and it poured.
Tomorrow will be another day.
Thanking our Lord as I pray.

Sunday, April 12, 2015

APRIL IS PARKINSON'S AWARENESS MONTH





Joy is something we try to display
Even when times are a little bit grey
Sweat and years we have suffered
But we always knew, that we are tougher.

We have daily struggles, some with so much pain.
Our body and mind, are constantly drained.
The path in our life may never be straight
Contain lumps and bruises that aren't so great.

No matter what the circumstances,we continue to try.

We pick ourselves up, when we are bruised and sometimes cry.
We work hard to slow Parkinson's down
No time to waste and sit and frown.

We meditate and exercise 

to help us feel more energized.
We take our medicines on time
To insure we are all fine
Some of us are in Clinical trials
Helping with research, is worth while.

One day we may have a cure.
We will celebrate, that's for sure!

Friday, April 10, 2015

What is Happening to me

I move at a snail's pace
I'm not in a race.
Sometimes I fall
Or I can't move at all

It's as if my feet are glued to the floor
I have trouble sleeping, so I don't snore.
At times I may drool
This seems so cruel.

My voice is like a whisper
Repeating words to sound crisper
Sometimes I show my tremor
There is no way I can sing tenor

My brain is filled with hardening of the arteries
Maybe they could do a roto - rooter with a battery.

Sometimes I shuffle as I walk
I seldom can walk and talk
I put a smile on my face
To be happy for heavens sake

I love life that 's the way I feel
This helps me to be able to heal.
I wish I could do what I use to do
But I will not fret or I'll get the blues.

There are times I go in my pants
It's embarrassing,  but I take that chance
I try to be normal as can be.
It can be hard just to be me.

Life is to short to complain
I rid negativity from my brain


Wednesday, April 8, 2015

Live Life and Have Fun



It doesn't matter what your age is with Parkinson's Disease
Live life, laugh, play and have fun, can't you see
You never know if tomorrow will ever be.
My bones ache, my body is sore, sometimes I fall to the floor
I will not give in, or quit, I want to live life some more.
There are times I'm unable to sleep
Some nights I dream and weep.
Nightmares give me a chill
They just seem so real.
I try to play golf knowing I'm lucky to finish 9 holes.
I end up with the highest score of all.
But it is fun, even though I never get a whole in one.
Live your life like it's your last
Just enjoy and have a Blast!



Tuesday, April 7, 2015

Somedays can be difficult to move



It can be difficult somedays to move
But you must move to get that groove
So lift your arms up and then put them down
Turn your body around and around.
If you can move your feet
Try to march, it is such a treat.

Singing helps you to stretch your lungs
Before you know it, the melody comes.
We will not give in to this disease
We will slow it down for you and me.

You can do it, I know you can
I will be your number one fan!


Sunday, April 5, 2015

Music



Music has a truly amazing power
to help us feel like we are healing
By playing religious songs that are appealing.
When we don't want to exercise
It can lift our spirits to an uplifting beat.
This will make you feel more energized

At times when we meditate,
There is music for that
so please don't procrastinate.

Music may entertain and inspire
It can help light our inner fire.
It can also give us hope
when we need it most.

Together with music we can do good
sharing with others as we should.

Thursday, April 2, 2015

The Story of the Tulip


STORY OF THE TULIP
 
The Parkinson Foundation of Oklahoma is a not-for-profit 501(c)(3) organization. 
Have you ever wondered what the story is behind the red tulip that is part of the PFO logo and so many other Parkinson organizations’ logos?

The story of the Parkinson Tulip began in 1980 in the Netherlands when J.W.S. Van der Wereld, a Dutch horticulturalist who had Parkinson’s disease, developed a red and white tulip.

In 1981, Van der Wereld named his prized cultivar, the ‘Dr. James Parkinson’ tulip, to honor the man who first described his medical condition and to honor the International Year of the Disabled.

The tulip received the Award of Merit that same year from the Royal Horticultural Society in London England, and also received the Trial Garden Award from the Royal General Bulb Growers of Holland. It is described as a flower: ‘exterior, glowing cardinal red, small feathered white edge, outer base whitish; inside, currant-red to turkey-red, broad feathered white edge, anthers pale yellow’.

On April 11, 2005, the Red Tulip was launched as the Worldwide Symbol of Parkinson's disease at the 9th World Parkinson’s disease Day Conference in Luxembourg.

Now you know!!
 

I Choose to be Happy


APRIL is PARKINSON'S AWARENESS MONTH




Life is full of beauty, just open your eyes and see
Feel the sun shinning, feeling its power
The bees are buzzing around the flowers
These are things to appreciate for you and me

Look at the birds building their nests
All are busy doing what's best.

It's time for me to get busy and begin my exercise
 to slow down Parkinson's disease 
This helps me to feel more energized.
I also meditate helping me
to rid myself of the blues.
As I relax on the lanai, I listen to the water flowing
and then I hear the sound of a bird crowing.
I look to see and it's a crow near me.

Nature is full of life and I feel that way too.
I choose to be happy, instead of feeling blue.