About me
As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.
Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.
Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.
I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.
When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.
But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .
Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.
I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.
God Bless,
Margie
Larry & Margie
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Thursday, December 31, 2015
Wishing you a Happy New Year 2016 !
Thursday, December 24, 2015
When Santa met Jesus
So the story goes ...
He bowed his head, and then he said,
"Dear Lord, I need to know."
With lots and lots of toys,
And I fly high across the sky,
Delivering them with joy."
They ask for many things,
And so hard I try to satisfy,
With each toy that I bring."
"It is my mission every year,
To reach each child I can,
To leave love and joy with every toy,
As I fly throughout the land."
Am I doing wrong,
To drive my sleigh on Your Birthday,
And hear cute Santa songs?"
"I'm troubled, for there is no way
I would invade your territory,
I'd feel very bad, if I made you sad,
I do not seek such glory."
Spoke to Santa's heart direct,
"You're a necessary emissary,
You are one of my elect."
"I'm pleased to see your jolly self,
Make so many children smile;
I, too, rejoice for girls and boys,
And I feel you're most worthwhile."
In the manger where I lay,
You bowed to me on bended knee,
You, too, were born that day."
"Dear Santa Claus, I've chosen you,
My First Ambassador of Cheer,
Please celebrate on my birth date,
And do this every year."
And you're essential on this earth,
You're a needed part in all men's hearts,
Of everlasting childlike mirth."
Copyright © 2000
Wednesday, December 23, 2015
Poor Me.
Monday, December 21, 2015
A CHRISTMAS STORY TO REMEMBER
But I knew Pa was not very patient at one dragging one's feet when he'd told them to do something, so I got up and put my boots back on and got my cap, coat, and mittens. Ma gave me a mysterious smile as I opened the door to leave the house. Something was up, but I didn't know what..
Sunday, December 20, 2015
Alone
Monday, December 14, 2015
Our Christmas Party
Saturday evening was our neighborhood Christmas Party
We talked and laughed a little loud and hearty
It began with the Acapelican's singing Christmas songs
Some of us joined in singing right along.
The food was quite delicious
It was so scrumptious
The entertainment was a wonderful singer
To many of us, thought he was a winner.
Listening to the music is so fun and sweet
When I hear my songs, it makes me move my feet
We danced like we were young again
I didn't have to use my cane.
After so many songs and dances,
I didn't want to take any chances
I haven't fallen, and I am getting tired
It's time to say goodnight, and go home to retire.
Friday, December 11, 2015
What an Uplifting Day!
Small Alligator |
I was out on my pool deck and just viewing
I saw that he was curious, thinking something was brewing
As I took the picture, the light flashed and the alligator went under
It splashed so hard it sounded like thunder
Egret |
Grey Heron |
Tuesday, December 8, 2015
Breathe
HUGS TO YOU BOTH
Friday, December 4, 2015
With Parkinson's - You Don't Have To Be Old
Tuesday, December 1, 2015
Days
There are days I just want to say
Dear Lord take this pain away
I exercise through it with the love of Christ
Christ showed his love with all he sacrificed
Thank you Lord for this day
I am here because you let me stay.
I can not worry about what will be
Each time I take a step, I feel so free
I went for a walk and saw so many people
As the bell rang from the Church steeple
I stopped by to visit a sick neighbor
It makes me feel good by doing a favor
I brought her soup and some crackers too
She was getting over the stomach flu
I follow my heart and my intuition
I know that is my number one mission
Monday, November 23, 2015
Thank you dear Lord!
Thank you for the days I am here
I appreciate my families, I hold so dear
When I was diagnosed with Parkinson's disease
My husband Larry and you, dear Lord were with me.
You gave me strength and power to foresee
When I had my stroke, you were with me
Through hard work and courage I was able to conquer it
I realized that without you, I could never be able to win.
Thank you dear Heavenly Father.
I feel so blessed to have you with me
I am thankful for the people I meet
The friends that I have, including my on-line friends.
I will value their friendship forever, until the very end.
Thank you for giving me the love of caring for others
Without you, why would I even bother.
My love of life is within me, to carry on
Even when I fall and get up each and every morn
Thank you !