About me


As far as I can remember, I have always been athletic. To find out that I had Parkinson's Disease in 2004, was a total surprise! I had to learn everything that I could about this disease. I read everything and went to many seminars and have and still do participate in Clinical Trials. After reviewing my medical records it was determined that I had tremors in 1987, at age 38 years old. I can no longer smell, I drag my left legs often. I loose my balance but I do enjoy dancing. If I fall, I get right back up.

Many things happen to a person with Parkinson's dsease. As of this date, there is no cure, just medicine and/or DBS to help. I can not have DBS because of the damage done from my previous stroke in the area where the surgery would take place. I am getting ahead of myself.

Then came the major stroke in 2004, after my Parkinson's disease diagnosis. How could this happen? Paralyzed on my left side. I had to learn how to speak, chew and swallow foods, regain all movements on my left side including using my hand and fingers to pick up things, legs and feet to move, stand, learn balance and walking., rebuild the muscles. I won't get into that. It took a year of 3 to 4 hours each day of all kinds of therapies. I had a blood clot in a vein burst in my brain. I thank God that I was able to get back to 99% of me.

I have had 4 major surgeries for female problems, beginning in 1981 and so far no more since 2009. In 2010, we ( My husband and I) purchased a motor coach and traveled over the US spreading the word about Parkinson's disease and passing out brochures We no longer have the motor coach.

When I was diagnosed with Dystonia of the feet and calves, I thought ok, I have had enough. Surely, nothing else will happen.

But I was wrong, more would come. I lost the bone in my lower jaw and ended up with cadaver bone, implants, and gums, and snap in lower dentures. I have had 6 other surgeries adding more bone and gum. I also have been dignosed with temors of my voice box, .

Through all of this, I continue to feel totally BLESSED! I Thank God for helping me. Of course I have pity me times, and say, Why Me, Lord? I am human, but most of the time when this happens, I look in the mirror and say, Why Not Me? I am a fighter and I will continue to fight this disease called Parkinson's Disease. I continue to exercise and meditate.

I use to be so shy. Now I give Seminars on Parkinson's Disease Awareness. I also began writing poetry, I hope you enjoy it.

God Bless,

Margie

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Wednesday, April 30, 2014

Happiness of Life

The happiness of life is made up of minute fractions—
the little soon-forgotten charities of a kiss, a smile, a kind look, 
a heartfelt compliment in the disguise of a playful raillery, 
and the countless other infinitesimal of pleasurable 
thought and genial feeling. 
                                                                     Samuel Taylor Coleridge






Being around family and friends,                     
Sharing our thoughts and feelings,          
The laughter
and the smiles.


When I say hi to someone with a smile,
 it seems to brighten their day 
and it makes me feel good inside as well.

We are in this world together
 and by sharing yourself with kind words,
or helping others is a place I want to live.
Fortunately, we found this paradise we call home.


Designed By Me.
Designed by Me.
















Parkinson's Disease can be hard and painful to me. By helping others, it takes my mind off
of my problems.

Tuesday, April 29, 2014

Troubles

  • I have heard there are troubles of more than one kind; Some come from ahead and some come from behind.; But I've bought a big bat. I'm all ready you see.; Now my troubles are going to have troubles with me! - Dr. Seuss

Wishful thinking! We can't  do this, but we can fight it in our own way, by trying to move our bodies. 

Go out in the sunshine just for a short time. It lifts our spirits! We do need our Spirits Lifted.

Please don't forget to smile if you can, and to be thankful to the ones that are our Caregivers.

Without their assistance, we would be unable to manage. Our Caregivers are to help us only on things we can't do for ourselves.

It is our responsibility to fight this thing we call Parkinson's disease (PD), by exercising, reading, yelling, singing and eating properly.

Living life the best we can!

Sunday, April 27, 2014

A Very Special Day

This morning  I had my second lesson of learning to play golf. It makes me feel really good when I hit the ball  Later in afternoon, I visited new neighbors and it was such a nice visit.
I can say there was so much love that the family had for one another.  It was wonderful hearing that they have been married for 30 years.

My husband and I went out to eat  for dinner.




It wasn't long after returning home, I felt like I was going to burst.  This is what I felt like:
I think I need  
Tums or something Ha! Ha!


Then we went for a walk and I began feeling normal again.




Have a good night!

Saturday, April 26, 2014

Having a Good Time

Living in a 55 plus community is wonderful here in Florida. There are so many activities. I work hard to move this body, some days it is good to me and other days, not so good.
Today is a good day, I am happy to say.
Bike riding in the morning. I did  a rare thing and took a nap.


I saw this on the web and wanted to share it with you.

Depression and at times feeling sorry for ourselves happens. 

WE ASK, WHY ME?

I M HERE TO SAY, WE DON'T KNOW THE ANSWER, 

BUT I TURN IT AROUND AND SAY WHY NOT ME.


Thursday, April 24, 2014

My Dystonia

Every three month's I received Botox injections for my dystonia of my feet and calves. When it gets close to the date for my next injections and when I am off (getting close to when I take my medicine for Parkinson's disease) the dystonia begins. It can last up to an hour or so at a time. It feels as if my feet are being twisted off of my legs. The pain between a 1 to a 10 can be as high as a 15.


   

My First Post

Yesterday I fell in the Kitchen  and I will show you my arm. I go through stages of falling.

The  bump is quite sore

   
My Movement Specialist Doctor started me on Stalevo again. I was on it in the past and I am so  glad that I am back on it.
As soon as my medicine kicks in, I will begin my day of riding my Trike ( tricyle).  It is beautiful here in Florida so on these days I take advantage of the weather.
This is from taking blood thinner. Ugly but it keeps the blood clots from forming.


 I only pedaled  my tricycle for 3 plus miles. I made homemade chicken pot pie. Yummy.

Tuesday, April 22, 2014

SPENCER MY SERVICE DOG IN TRAINING BEFORE HE BECAME CERTIFIED

SPENCER , MY LITTLE HERO





Last week I was ironing, and Spencer kept circling me, and I asked him what is wrong with you, then he began whimpering. I put down the iron. I began asking myself am I beginning to have another stroke.  I went to pick up another pair of shorts to iron, staying close to the phone and chair. I  have not been able to smell with my Parkinson's disease, for years. I  turned around and looked at my iron, Sparks were shooting out  and then flames. I immediately pulled the plug and the flames stopped but the smoke continued and I placed the iron in the sink. I then ran water over it and it was burning inside, I continued to run the water until it was soaking in the sink. Apparently the iron was burning from the inside and Spencer smelled it before you could see anything and as I said earlier, I am unable to smell.  I thank God for Spencer and the dog trainer, Dawn Tait.

Monday, April 21, 2014

On My Tricycle
















A tricycle was recommended was  to me since I have balance problems and fall.

My first day, I could only pedal  about a half block and then returned home. I would not give in. Each day I took it a little further, and 3 months later I ride close to 4 1/2 miles. I also feel better.

I am slow taking almost an hour to complete my tricycling. But I do it. For me and many others,
exercise seems to help me be more limber and helps me with my pain.